Test Results

Today we had our meeting with Dr. Bebin in Huntsville. She was just amazed at how well he has progressed since our last visit with her months ago. We had to wait an unusual amount of time today ( over an hour and a half) in the waiting room before we were ever called back which we found to be a little frustrating. I mean you can only keep a 1 year old pacified for a certain amount of time. Dawson did his stuff though. He was the ham of the waiting room. Crawling around flashing that little smile at everybody. It turns out though that the long wait was not in vain. While waiting, we met a family of a three year old who was diagnosed with Infantile Spasms at around 6 months old. His seizures were not able to be controlled and has now progressed to Lennox Gastrout syndrome. Turns out they are from Florence as well and his pediatrician is the same as Dawsons. Small world huh?? They have been all over the country including John Hopkin's and they said that by far Dr Bebin was the best Pediatric Neurologist they had ever come in contact with. She has been the only one we have ever been with but Allison and I both have always felt blessed to have her as Dawson's doctor. Once again, Gods hand at work.

It was so nice to actually Meet somebody who totally understands what we have been through. Over the past 10 months we have met ( online) some of the most amazing people who's children suffer from the same thing Dawson has. We have networked, prayed for, prayed with, cried for, and allowed these wonderful families to be a source of comfort and prayer for us and we are grateful for each and every one of these families. We have fallen in love with your children and pray for them everyday. How nice though, to actually get to sit and talk face to face, with somebody who has traveled the same road as us. To actually get to sit and look at this beautiful boy was such a comfort to us. You see, even though we have met so many wonderful people, and our families here have been such an amazing source of comfort and support, we have always felt..... well, just so alone. Today that feeling of being all alone went away as we talked with this courageous mom. We gave her our email and phone number and we hope to get to speak with them more often. Once again, What seems like an extremely long wait at a Doctors office, actually turns into God's hand at work in our lives yet again.

On with the test results. Basically they gave us no indication that anything is wrong with Dawson. There were a couple of numbers that were off and the plan right now is to do a little blood work to check his thyroid. But there was nothing in the report that suggested to Dr. Bebin that anything more needs to be done at this point. Its one of those " No news is good news" type of deals. There is a local geneticist that she wants to confer with and wants us to meet so we are going back in November to have an EEG ( haven't had one of those since becoming seizure free) and then we are going to meet with this geneticist and Dr. Bebin after the EEG is done.

Initially I am not at all interested in doing more testing on Dawson. It seems like doing more testing equates to chasing a ghost. So there it is, months of waiting on pins and needles and the test results come back normal( with the exception of his resting metabolic rate which may suggest a thyroid issue. )

The long day has taken its toll on Dawson ( and us) and hopefully bedtime will come early tonight. Thanks for looking in on our little guy and we love you all dearly.

Jeff and Allison