I still have the feeling like I have been picked up and dumped right on my head. I still can't believe we have been thrust back into the seizure world. Never saw it coming either. Hands down, looking around at the blue skies, then POW!!! right in the kisser.
I for one am glad this week is over. It has been full of nothing but disappointments. Today was supposed to be Dawson's one year seizure free party and wouldn't you know it.... the weather was just beautiful. Perfect for a party. So now, instead of celebrating, we focus all our energy on getting these stupid seizures to stop again. Oh and this whole week, Dawson has been a pill. I mean a super pill!!. Who can blame the kid though.. Lets see, recently, he got shots, got fever, started having seizures, went to the ER in the middle of the night, had an EEG, got poked in both arms for blood draws, started cutting molars, and has green slimy snot constantly running out of his nose......................
I guess I'd be a little fussy too if that was me.
BUT..................... the past couple of days we have seen Dawson start to act like his old self again. His mood is improving and we are very grateful for that. And the seizures....... well there still around. He's having them when he wakes. Not every time, but more often than I can stand.
Even though seizures are around, he continues to do really well. He woke up this morning, called out to Mama. Gave the sign for diaper change and then said... " I want change" pretty impressive huh??? I certainly was.
So were here, strapping on our seizure armor again, getting ready to fight the seizure monster.
DEATH TO THE SEIZURE MONSTER!!!!!!!!!!
Thanks for your thoughts and prayers. We love you
Jeff and Allison
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2 comments:
I just caught up with your blog with what has been happening lately. Devestating!!! Just when you were ready to celebrate such a huge milestone in his life...tody must have been difficult. It sounds like there is so much going on with his little body. Hopefully, once everything else calms down so will his seizures.
Bless his heart! Glad that his good little nature is shining back through, though. He is lucky to have such awesome parents that love him so much! You guys will beat this thing. Just hang in there!
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