Neuro Visit

This afternoon we made the trip over to Huntsville for a Neuro visit. Dawson was HORRIBLE!!!!

He took a little nap on the drive over and I thought with a nap under our belts that we would be Golden. w-r-o-n-g

In the waiting room he was fine.

There was no warning at all.

No warning that within moments of them calling his name that he was going to unleash holy terror upon the entire Neurological clinic.

We walked down the hall and got to the station where we take blood pressure and get weighed. Hes done it time and time before like a champ. Not today

Today my friends, Dawson decided from the get go that he did not want to be there and had no problem letting everybody know that he didn't want to be there.

THE ENTIRE TIME!!

He screamed, he cried, he fussed, he yelled bye bye 1000 times and then he would start back at the beginning again. Meanwhile we are trying to have a very serious important conversation with his Neuro ( in between screams)

Allison had to take him out of the room and walk with him up and down the halls while I talked and then I would take him and travel the halls so Allison could talk to the Dr.

Even that didn't help. He screamed the entire time.

You know the kid in the Doctors office that is causing such a ruckus that you can't wait for them to leave??? Come on , you know the one I'm talking about....

Well that was Dawson today. We were there for an hour and a half and i KNOW they were so glad to see us leave.

The last visit he had a bunch of needle pricks and blood work done and I think he remembered all that. It even continued on the way home. It took about an hour of couch time with mommy before he was able to sort himself out and get back to normal again.

The visit was a little disheartening. Dr Bebin, who is one of the most awesome Doctors Ive ever met, seemed to be at her witts end as to what to do next. We have tested him for every possible genetic and metabolic abnormality that is currently possible and they have all come back negative.

Lots of blood work??? check
MRI?? check
PET scan?? check
Muscle Biopsy check
Genetic Specialist?? check

She feels that it is so important to find the source of whats causing his seizures. ( and I agree) The more you know about whats causing them, the better you can taylor a treatment plan to get them stopped.

She suggested going back to Atlanta to see the same Genetic Specialist that did the muscle biopsy just to make sure there is nothing were missing. To me that says-- I'm not sure what else to do--

For now we are going to add Keppra into the mix of his current meds. He has done the Keppra thing before but at a low dose. So hopefully we will see some changes for the good with this combo of meds.

So today was a long one but everybody is good this evening. Thanks so much for the support and prayers you have shown.

Give our love to all

Jeff and Allison