Not much new around here these days. Still fighting the seizure monster. Dawson is still playing the " I'm a sweet sweet little boy, no..... wait now Im a mad, angry, raging 2 year old on 3 different seizure meds" game. His mood can/will/does change in the blink of an eye and I feel so sorry for him. It must be complete misery for him to be so young and have all these different meds ( known for altering moods and causing rage) in his little brain.
Sometimes I think the medications are worse than the seizures themselves. When we started coming off the Keppra, there was a noticeable difference in how hard his seizures were. Some of them were very hard and very hard to watch. But when we go UP on his Keppra we get a little better control over them. Meaning he still has them but just not as hard.
We need to remember that controlling how hard they are is not the name of the game. The name of the game I want to play is what is going to STOP them. Of course I have no clue what that's going to be,so we continue to follow the advice, word for word, of those who do seem to know.
Today has been a pretty typical day for him. The weather here this weekend has been just wonderful so late this evening we all headed out to the golf course to play for a while. Dawson was 2 over par after 5 holes and then decided he had had enough and was ready to go back home. Such a shame, he had a great round going!!
Anyway, thanks for your thoughts, kind words, and prayers. We love you
Jeff and Allison
2 comments:
My Alabama friends ... this is a monster that WE wish we could scare away from sweet Dawson.We want these gone for him and for you all so very much.The mood swings much be horrible for everyone and most especially Dawson.Just a little guy who deserves to get back to seizure freedom.We remain confident and prayerful that that time will come again.Love from California.
It is amazing how much these 2 kids looks just like both of you! When I saw the pic of Madison asleep, I though....Alli at first glance. Then I saw Jeff, too. Then when I looked at Dawson with his cap on backwards I immediately saw Jeff!!! But, then of course, I can see his Mommie, too! Love you guys! Love the pictures!
Rudy
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