A pretty good week

Hope everybody is having a great weekend!!

Didn't do any post last week because there just wasn't anything note worthy going on around here. Pretty much the same ole same old. Seizures have been about the same, and sometimes worse. In the beginning of a cluster the first few can be pretty hard and then they will taper off to litte ones. Not that one seizure is better or worse than the next,but its harder to watch him have the harder ones.

We spoke to his Neuro and we told her we were ready to pull the plug on the Keppra.

I know, and Ive said it before, he is defiantly going through some " I'm almost two" and some
" I'm all boy" stuff right now, BUT every time we increase his dosage of Keppra, for about two days, he is a Jeckyll and Hyde monster!!

If the Keppra was helping, then I could most defiantly see dealing with the latter, But the Keppra is doing nothing so there is no sense in dumping this monster juice down him.

So the plan for now is to slowly ween off the Keppra and up the dosage of Lamictal. The only bad side effect of Lamictal............... A rash can develop that could kill him.... NICE!!!

Gee Whiz, cant we make a seizure drug without devastating side effects???

I mean this is what these drugs have done to our summer thus far......

Because of the Topamax, he does not have the capability to cool him self off by sweating like everybody else does. So if he goes outside to play during the day it either has to be in a pool, or we have to have a garden hose nearby because he will overheat in a heartbeat. Soooooo outside playtime for him in the Alabama heat is either 7: 00 am or 8:00 pm.

And if you go outside during those times around here all you are going to do anyway is feed the mosquitos!!!!!!!!!

So one would think, well maybe you guys could go places like a movie, or out to eat, or something like that.

WRONG!!

Please refer to the top portion of the page where I referred to Keppra.

We don't dare take Dawson out to eat right now. Its too big a risk

And now there is this Lamictal increase the this whole deadly rash thingy.

So it seems possible to me that at any time we could be dealing with a little boy who's face is red as a Popsicle because he cant cool himself, who is raging and running around looking for people's hair to pull, and has a rash.............. And is still having seizures

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Ok so that's kind of a sarcastic synopsis and a little over exaggerated but there is a lot of truth in there as well.

This morning Dawson has woken up and is being an absolute angle. We are eating bananas and watching The Wonder Pets and all is right in the world.

One last thing. I need to brag on Katelin!! As of last week, she is giving herself her own insulin injections. We are so proud of her and this major accomplishment. She is 7 years old, and is able to stick herself with a needle. This is a huge step for her and her ability to be self sufficient with Diabetes. Needless to say we all are very proud of her!!!

Ashlyn has really stepped up her game and is really doing great helping with the younger kiddos now. Last night she gave Madison and Dawson baths and got them ready for bed. A huge help for mommy and daddy!!

And as for Madison... Well she is the most beautiful, kindest, sweetest, funniest 4 year old I know!!

We thank you for your constant prayers for us as we battle seizures and meds and the devastating effects both of them have.

Our love to you all !!

Jeff and Allison