Weekend stuff

Seizures are weird now-a-days. Just months ago, seizures were only prevalent after waking up from sleep. Never going to sleep, never in the middle of the day, just coming out of sleep. They came in the form of clusters, always.

Now it seems as though sleeping has nothing to do with it. The clusters of seizures are few and far between ( other than this morning, he went a week without a middle of the night cluster) but now his day is filled with single spasms. One at a time, randomly throughout the day. I mean its the exact opposite of seizures just months ago. I Just don't get it

And besides that, we now know he has the potential to have many seizure types such as Grand Mal, Tonic, and drop seizures along with the Infantile spasms. Always fun having those looming around in the back of your mind. Hoping and praying you never see one of those again.

I say this to say, that when we talk about his case that was conferenced about at UAB this coming Tuesday I hope we get some solid answers. Solid hardcore answers like will he be a candidate for brain surgery. None of this wishy washy stuff. I want black and white, yes and no answers.

Now to change gears a little, just wanted to talk briefly about some of the new stuff Dawson is doing ( good and bad )

We have found that Dawson loves talking on the phone. If you call our house or cell, be prepared to have a conversation with Dawson on the phone. He can carry on a decent conversation as long as you are the one asking all the questions. ( this is good)

Dawson loves Fruit Loops in a bowl so he can dump them out and then eat them off the couch like a chicken pecking the ground for food ( this falls under the bad category)

He has also learned how to drink soda straight from the can ( usually without spilling it) Pretty impressive huh?? ( once again, good category)

He has started putting his shirt in his mouth and sucking on it until it is completely soaked.
( yuk, and bad )

And calling the dogs by name is a pretty new trick. He can call Lucy, and for Sophie he says
"Lufie"

So despite numerous seizures, and behavior problems, ( which are a little better for now) we still have some good things happening for us over here. And we are truly thankful!!

Love to all

Jeff and Allison