I know we haven't done a very good job of updating recently and for that I apologize to the few who check in and see how were doing.. The fact is, there just hasn't been a whole lot to blog about.
Its almost like that movie Groundhog Day. You know the one where he wakes up and every day is the same...
Its not quite that bad, and as far as some things are concerned, groundhog day is not such a bad thing. There just hasn't been any changes in Dawson and therefor leaves my simple mind with little to talk about.
Seizures?? yes and still daily. Scattered randomly throughout the day. That's the groundhog day that is not so good!!!
All in all, just as always, Dawson continues to do extremely well despite the stupid seizure monster. Slowly, but steadily, he continues to do and say new things. Progress doesn't have to be leaps and bounds.. It just has to be progress. And for these progressions we give all thanks to God. Just this morning I watched Dawson sit in the floor and try to put his shoes on. Not just try, but was almost successful with one of them. Had the right foot and everything. Then he gets up and comes and grabs Madison's hand and takes her to the fireplace and tells her its
"HOT" These are simple things I know, but they are simple things he wasn't doing a month ago.. Progress is good right??!!
As for us this weekend?? Beautiful weather has once again invaded our little corner of the world and outdoor activities will take top priority. Lots to be done!!!
Also want to do an online Happy Birthday to my best friend and wife Allison. Last week she turned 30 which makes her officially an old woman now HA!! Happy Birthday ALLISON!!!
Thanks for checking in and we love you all
Jeff
About Me
- Dawson
- Dawson was born Sept 4 2007 and was diagnosed as having Infantile Spasms when he was 2 months old. Infantile spasms are a rare seizure disorder. Our story is one of faith and hope. Dawson now has multiple seizure types as well as developmental delays. We are prayerful that we will be able to find a way to stop the seizure monster that lurks in his brain. Your prayers and support mean the world to us.
4 comments:
Hello! The title to this blog pretty much explains the last 4 months of our families life. We have a son who is 6 months old, and has been having cluster seizures for the past 4 months. My husband found your blog while searching infanile spasms online. Our pediatrician thought Landon was having these, but he has been diagnosed with myoclonic seizures. (From specialists at Children's Hospital in Pittsburgh) He has seizures daily, anywhere from 1 to 6 clusters a day. The clusters normally last around 3 minutes(he may have a hundred small seizures back to back). It is so hard to watch your child go through this, as I'm sure you know. We are trying to reach out for someone to help get his seizures under control. He is currently on many medicines(Keppra, Trileptal, Topomax, Klonopin, Coenzymated B6, and Lucovorin) Landon has been hospitalized 2 different times, almost a week each time. We have had numerous EEG's. Lots and lots of bloodwork, urine tests, MRI, CT, and spinal taps. I sometimes feel we are hitting a block wall with his treatment. We are now seeking a second opinion in Philadelphia. I was just wondering if you have any suggestions/words of encouragment that this will get better? Hope all is well with you family!
XOXO,
Landon's Mom
Landons mom, can you please forward me your contact info?? I would love to talk with you about all this
I have actually made a page for Landon ...landonmichaelstory.blogspot.com
I'm still learning this site...my email is hrkovalski@yahoo.com. Send me a email and I will send my info back to you! Thanks!! Landon's Mom
Glad to hear that things are going well. Even though I don't post much, I always check in on little Dawson! He's a miracle child! Truly amazing...and so are his parents!
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