Sunday March 9th Update

Today has been a great day for Dawson. We had thought we were starting to some changes in seizure activity and go figure as soon as I sit down to type this he started having some. UGGGGGG I wish I could figure this out. There is no rhyme or reason to these stupid things. Yesterday he only had one cluster, the day before only one, and today he had some but they were only a few per cluster and VERY mild. Then this evening he had some harder ones???? I just dont get it.

Hopefully our trip to Birmingham will answer some questions. We are leaving here at about 5:30 in the morning and tomorrow is going to be a long day for all of us. From what I can tell, most of the testing will be done late morning if all goes to plan. Then the rest of our time there will be another 24 hour VEEG. Pray for Dawson tomorrow as he is having these test done. We hope that putting him through it will provide some answers as to how to better treat his seizures. He has a fighters spirit and he will need it tomorrow Im sure.

We had to leave Madison at Granny's and Grampy's for tonight and tomorrow night while we are gone and we both hate having to do that. Theres no telling what she thinks and I miss her terribly already.

Well were going to try to get to bed early tonight to prepare for the day tomorrow.

Thanks for your prayers, and please say a prayer for Dawson in the morning.

We love you

Jeff and Allison

Seizure video

When you first start the video you will see that Dawson has just had a " tonic" seizure. What you are looking at is the aftermath of the seizure. He is just coming out of it and looks very dazed and confused. The confusion lasts for a few seconds and then he has another seizure. The second seizure is a true " infantile spasm" It only last a second or two but none the less is equally disturbing to watch. This video was taken when he was 2 months old. Over the coures of the next couple days we are going to be posting some videos of his seizure activity. Tomorrow we will post the actual video that was used by his Doctors to diagnose his seizure type. Then after that we will be posting what his seizures look like as of today. BIG difference!! We hope the videos will give you a " clinical" look into what were dealing with. It makes alot more sense to see it as to read about it. We love you all and thanks for your thoughts and prayers.

Jeff and Allison