Vigabatrin has two different side effects other than peripheral blindness. One being extremely sleepy, and the other is having insomnia...
It looks like we may be going with the insomnia. He woke around 1:00 a.m. and never really went back to sleep last night.
He also had a large cluster of seizures ( about 30 yesterday afternoon) and then some again this morning. It is hard to stay positive all the time and today seems harder than normal.
We hope he sleeps better tonight then he has the last two nights as we are starting to wear down a little with no sleep.
Thanks for you thoughts and prayers.
Jeff and Allison
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