Still doing good on seizures since going back down on the Lamactil. None yesterday and there was a possible 1 seizure today but I was told that it was so subtle that nobody was sure if it was one or not. I am going with the optimistic side and saying none today either.
Can you believe we have been battling this for over 6 months now?? There have been times that I wondered if we would ever be able to say " Dawson was seizure free today" And here we have been saying it more and more often over the last couple of weeks.
God is amazing and Dawson is such a fighter. I know it to be a fact that there is going to be a lot of awesome things accomplished between those two. So much already has and we find ourselves once again on our knees thanking God for another day with no seizures.
Dawson's physical and occupational therapy are going really well. He is picking up and eating little fruit puffs ( baby finger food) and so far seems to like everything that we offer in the way of food. He is cutting another tooth and is starting to seem more and more interested in trying to move to get things that are out of his reach. I feel like we will soon be crawling.
One of his favorite things now is taking a bath with Madison. Although I think she likes it more than him. I know we dont say a whole lot about Madison on here because this blog is dedicated to Dawson and his progress but I just have to tell you...... You have never seen a more proud " Big sister." The love she is able to show for him at the ripe old age of 3 is something we could all take lessons from. He is her " Baby Buddy" and she takes such good care of him. It is so neat to watch the bond between them grow.
We finally got a date locked down that we will be in Atlanta. We will arrive on June the 2nd, Have consultation visits with the Doctors on June 3rd, his testing ( spinal tap and muscle biopsy) will be on June 4th and we will probably return home that day as well. Since this is a clinic and not a hospital we will have to try and find a hotel room nearby and we hope that gas prices will go down a little between now and then although it does not look like that is going to happen.
Pray that Dawson will continue to be seizure free and pray for us as we get ready to do more testing on him.
We love you
Jeff and Allison
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1 comment:
Hey Guys...
Your post today...beautiful! Honestly, your optimism & faith are a true inspiration! So thank-you...from a mom who sometimes misses the mark on that end! :o)
I know what your mean about Madison...our Bristel is 3 too...and it is a beautiful thing watching her with *baby Trevy*!
Lastly...I have not used this option myself. BUT I have heard that you can get financial aid via the Epilespy Foundation if you have to make an out of state trip for testing? May be something to look into?
Prayers for you guys...
...danielle
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