Seizure Update

Ok, so we've kinda gathered ourselves a bit. We've been going through all the emotions that one would suspect we would go through.. Crying, sadness, anger, uncertainty. But now we are once again finding ourselves completely consumed in faith. After all, at the end of the day, if you don't have faith.... well you have nothing. I know that faith will once again see us through this..

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Last Wednesday, he went in for some shots. One of the shots was prevnar http://www.drugs.com/prevnar.html

My research about Prevnar has shown that that it can cause seizures. Its rare but hey, so is Infantile Spasms. Much of my readings have also shown me it is not advised to give to children who have a history of seizures. 30 hours after receiving this injection, my son, who was one week away from being seizure free for one year started having seizures. And shortly after that the fever started. Saturday night his fever went up to 104.5 and we went for a little visit to our local ER in the middle of the night. ( yes it was me who freaked out and insisted that he go)

So the question is how did this drug make its way into Dawson?? Well, they injected it into him without so much as a word to us about what could happen, what might happen, what its used for, or anything. I have said it before but it bears repeating. I am NOT against immunizations... I am against the way they are done. I am against injecting a two month old baby with a concoction of different live viruses for the sake of big business and even bigger money. Yes, immunizations are a huge business. Don't believe me?? then do your own research.

So while we are at the ER, the ER physician called the DR on call at the clinic where Dawson got his shots from. ( Dawson's regular Pediatrician was not there when he got his shots, and he was not on call that night either.) The Doctor on call told the ER doctor that he doubted very seriously that the Prevnar caused the seizures. Instead he said that he must have picked up some kind of virus in the clinic ( we were at the WELL clinic by the way) and that caused his fever and seizures..... So I'm thinking, here we go with the big cover up. Sweep it under the rug and pretend it never happened. Now I know this can be debated 1000 different ways and even I see both sides of the argument, but there is no way anybody can convince me that receiving Prevnar did not make him sick and have seizures again. I just know in my heart that it did.

As a parent, You, I, and us have the right to know what is being put in the bodies of our kids. I have made a promise that he will NEVER be injected Ever again without my knowing exactly what it is and what the potential side effects can be. I get the fact that you can't have every parent running around deciding what shots their kids get and what shots they don't. Immunizations are a good and wonderful thing. But when your kid suffers from a specific disorder, and what you are injecting them with has the potential to make that disorder worse, then we have the right to know!!

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Today, Dawson is doing Ok. Yesterday he had no seizures but he woke up this morning and had a cluster of 20 something. The fever is mostly gone but yesterday evening and this evening he has been SUPER fussy. He has not been himself at all the past few days. Our happy little boy is not so happy right now. Hopefully very soon he will get back to his old happy self.

The seizures, so far, have not effected him mentally. He is still doing all the great and wonderful things he has done before. Running, playing, and talking. Yesterday he said another little sentence. " I want bite bite" that is so awesome.

We will talk to his Neuro tomorrow and hopefully get an appointment to see her in the next day or so. Thanks for all the supportive comments. We once again find ourselves searching for comfort and we find that comfort in God, our family, and all our I.S friends. We love you all more than you can ever know.

Jeff and Allison