Just a little video of Dawson working his game underneath the basket. Looks like a regular chip off the old block huh?????
Yesterday we went more than 24 hours without a seizure!!! That's right, we had no seizure activity yesterday and we couldn't be happier. For those of you who know us, you already know we celebrate EVERYTHING that can be construed as good news. He did wake up this morning and have a cluster, but oh how grateful we are for that short spell without any!!
I try not to get too ahead of myself but I remember that when they stopped last time, they stopped very slowly. One day with zero, then a week later another day, then we would string a couple of days together so on and so forth. Wouldn't it be awesome if yesterday was the the first day of becoming seizure free again.........
Just the thought of it gives me chills....
The downside to yesterday is that Dawson was horrible. Its hard to know whats going on in that little brain at times, but yesterday you could tell he was really struggling. First of all he slept for almost 12 hours. He has NEVER done that. As a matter of fact, I went in at around 10:00 and had to wake him up because he was way past due for his meds. The first part of the day seemed ok but then all of a sudden he would have this terrible outburst. Anger and rage were showing their ugly heads and then he would be ok again for a little while. Then in a blink of an eye, he would have this terrible outburst again. It wasn't like he was having a temper tantrum or anything like that. He would just literally out of the clear blue have a complete meltdown. Hitting, slapping, throwing stuff..... This went on all day until he finally went to bed last night.
So our prayer is for another day seizure free. Just one more would do nicely. ( Hey, I'm trying not to be greedy here.)
Thank you God for the one day we got!!!
And thank you for your prayers.
Our love to all
Jeff and Allison
4 comments:
Here's to another 24--keep us posted!!:) Love you!!
We celebrate right along with you ...and we keep our prayers coming for more of the same!Love from California.
YEAY to no seizures!!!!!
Sometimes Io find that when Connor isn't having as many seizures or hasn't had any for a period of time (never for a day though...holy cow that would be awesome!!) that his behavior is worse. he is much more irritable than normal. I don't know if it it is like a "build-up" that somehow makes his head hurt?? it is heartbreaking though!
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