NO SEIZURES TODAY!!!!!
We are very thankful for this. We have no idea what tomorrow will bring but one day with no seizures, is worth more to us than you could possibly know. Plain and simple.... We give praise to GOD for this day!!
We love you
Jeff and Allison
Wednesday, April 30, 2008
Tuesday, April 29, 2008
Tuesday April 29
Dawson slept better last night, thank goodness. Sunday night he woke up so much I felt like I hardly slept. He only had one cluster of 5 spasms yesterday and so far has only had one cluster today. He is in a great mood again today. Right now he is sitting on the couch playing with his toys with his little feet crossed. It is so cute how he crosses his feet, I LOVE it!!!
Jeff and I have had to quiz our parents about family history for this in depth packet we have to fill out for Dawson for the Atlanta thing. I am going to fax it to our Dr office in Huntsville and they will send it along with all the other medical info needed to Atlanta. We could have an appointment within a week after they receive the info. I wasn't quite warmed up to the idea of going and putting Dawson through all that yet. But, I guess the sooner we get there the sooner we can get it over with and hopefully get some answers.
Well, Dawson is doing the" I need mommy"cry, so I need to go. Thanks for checking in. We love you all.
Allison & Jeff
Monday, April 28, 2008
Monday April 28th Update
Hope everybody had a great weekend.
Over the past several days we have seen a decrease in seizures ( Praise the Lord) He is back to only having one to two clusters with only a handful of seizures per cluster. This is far better than we where we were a couple of weeks ago. Im not sure if decreasing the Topamax did it, or maybe starting the Lamictal helped. Im not even really sure that I care, as long as they are on the decline. Please pray that he will continue down this path of less seizures.
Allison and I have decided that we will take the trip to Atlanta to see the Metabolic Neurologist that his current Neuro suggested. This will mean more testing but we both feel that if finding the reason ,will help Tailor his treatment ,then we must leave no stone unturned. I guess the good news is is that because he is so young, he will not remember any of the stuff we have put him through. That's what we have been telling ourselves to make us feel better anyway LOL
He continues to be a happy baby. VERY curious about everything and we enjoy watching him learn and grow. Thanks for checking in on him and thanks for your prayers
Jeff and Allison
Over the past several days we have seen a decrease in seizures ( Praise the Lord) He is back to only having one to two clusters with only a handful of seizures per cluster. This is far better than we where we were a couple of weeks ago. Im not sure if decreasing the Topamax did it, or maybe starting the Lamictal helped. Im not even really sure that I care, as long as they are on the decline. Please pray that he will continue down this path of less seizures.
Allison and I have decided that we will take the trip to Atlanta to see the Metabolic Neurologist that his current Neuro suggested. This will mean more testing but we both feel that if finding the reason ,will help Tailor his treatment ,then we must leave no stone unturned. I guess the good news is is that because he is so young, he will not remember any of the stuff we have put him through. That's what we have been telling ourselves to make us feel better anyway LOL
He continues to be a happy baby. VERY curious about everything and we enjoy watching him learn and grow. Thanks for checking in on him and thanks for your prayers
Jeff and Allison
Saturday, April 26, 2008
Video of Dawson's Journey
Allison and I were talking the other day about how much Dawson has changed since he was born. It inspired us to share this video of his Journey so far. Even though is is only 7 months old, we have learned so much from him. We belive God intended to change our lives through Dawson and what he is going through and He has certainly done that!! Dawson has taught us how to be strong, how to be couragous, and most of all ( as you will see) he has taught us to SMILE no matter what your going through. This little guy is awesome and we are thankful for each and every day of the past 7 months. We hope you enjoy the video and our prayer is that in some small way he can touch your life as he has ours. Thanks for checking in
Jeff and Allison
Thursday, April 24, 2008
Thursday April 24th Update
Dawson had a really good today. He has been in a great mood today. He played a lot and has slept well today. He has been busy this evening munching on a Nilla Wafer. Not sure if it's OK for a baby his age to be eating those, but he sure seems to be enjoying it.
I can't remember if I posted this earlier but we are starting to titrate down on his Topamax. When we were titrating up, there was one particular dose that the medicine seemed to work best at. We are slowly going backward until we get back to that dose again. While on that dose he was averaging 2 clusters of seizures per day. As we got to higher doses of Topamax, he started having on average 4 clusters of seizures per day. At any rate I personally wish we could get him off of that stuff altogether. Even at its best, he was still having seizures, and it is very difficult to get him to swallow that much medicine. Usually one of has to hold down his arms and keep his head still while the other one pins down his legs ( they are really strong now) and then we wait for him to get really upset and when he opens his mouth to get some air to cry again we have to shove the spoon in his mouth. Its not as horrid as it sounds but its the only way to get him to open his mouth to take the stuff. He knows now whats on the spoon and he usually puts up a pretty impressive fight in order not to have to take it.
Other than the Topamax, we are still on the B-6 as well as Lamictal ( very low dose) He has only had one cluster of 7 so far today so all in all, today has been a great day for him ( and us.)
Thank you each and every one for taking time to check on our little guy. Your support and prayers are awesome and we couldn't do this without you.
Jeff and Allison
I can't remember if I posted this earlier but we are starting to titrate down on his Topamax. When we were titrating up, there was one particular dose that the medicine seemed to work best at. We are slowly going backward until we get back to that dose again. While on that dose he was averaging 2 clusters of seizures per day. As we got to higher doses of Topamax, he started having on average 4 clusters of seizures per day. At any rate I personally wish we could get him off of that stuff altogether. Even at its best, he was still having seizures, and it is very difficult to get him to swallow that much medicine. Usually one of has to hold down his arms and keep his head still while the other one pins down his legs ( they are really strong now) and then we wait for him to get really upset and when he opens his mouth to get some air to cry again we have to shove the spoon in his mouth. Its not as horrid as it sounds but its the only way to get him to open his mouth to take the stuff. He knows now whats on the spoon and he usually puts up a pretty impressive fight in order not to have to take it.
Other than the Topamax, we are still on the B-6 as well as Lamictal ( very low dose) He has only had one cluster of 7 so far today so all in all, today has been a great day for him ( and us.)
Thank you each and every one for taking time to check on our little guy. Your support and prayers are awesome and we couldn't do this without you.
Jeff and Allison
Tuesday, April 22, 2008
Some Pics of Dawson
Dawson and his friend " Blue" the Great Dane.
Dawson has been in a great mood today and sleep has been good. I think he must still be kinda worn down from his long trip and then having an EEG and Doctors visit done the day after we got back. Its amazes me that no matter what you put this kid through, all he does is smile back at you. He is such an inspiration to me because he always has a smile on his face and another one ready to go. I wish I could be half as resilient as Dawson has been.
He has still had a few seizures today. He had 18 moments ago after waking from his nap and hopefully that will be all for the rest of the evening. Please continue to pray for him. Our God is truly an awesome God and we give praise for the wonderful things that have already come from this.
We love you
Jeff and Allison
Monday, April 21, 2008
Monday EEG Test
Today we went to Huntsville for Dawson's EEG. First let me tell you that the lady who hooked him up for the EEG was just awesome. What has taken others 40 min with past EEG's ,she had done in about 5 minutes. She was very fast and we were very impressed with her. Shortly after being hooked up Dawson went on to sleep so the whole process took less than an hour.
After the EEG we had an appointment with his Neurologist. She said his EEG looked good. There was some seizure activity picked up on the EEG during sleep but the Hyppsarethmias (sp) are still gone. We were hoping that when he woke up from his EEG we could capture some of the actual seizures on the EEG and wouldn't you know it, the little stinker has gone all day with no seizures. We are glad of course, but it would have still been nice to see what they looked like on the EEG.
We also talked about going to Atlanta for more testing. She tells us that we have pretty much ruled out about 95 % of what could be causing these seizures. The Doctor in Atlanta would dive very deeply into the remaining 5 %. He is a Metabolic Specialist and she highly recommends that we go see him. They would probably take more spinal fluid as well as do a muscle biopsy on him.
Needless to say it has been a busy day and we are still trying to process all the new info. We are also starting the drug Lamictal. I would love to hear comments on anybody who has tried this before and what it did for them?? Side effects??
Pray for us as we have a lot of decisions to make in the very near future. We love you
Jeff and Allison
After the EEG we had an appointment with his Neurologist. She said his EEG looked good. There was some seizure activity picked up on the EEG during sleep but the Hyppsarethmias (sp) are still gone. We were hoping that when he woke up from his EEG we could capture some of the actual seizures on the EEG and wouldn't you know it, the little stinker has gone all day with no seizures. We are glad of course, but it would have still been nice to see what they looked like on the EEG.
We also talked about going to Atlanta for more testing. She tells us that we have pretty much ruled out about 95 % of what could be causing these seizures. The Doctor in Atlanta would dive very deeply into the remaining 5 %. He is a Metabolic Specialist and she highly recommends that we go see him. They would probably take more spinal fluid as well as do a muscle biopsy on him.
Needless to say it has been a busy day and we are still trying to process all the new info. We are also starting the drug Lamictal. I would love to hear comments on anybody who has tried this before and what it did for them?? Side effects??
Pray for us as we have a lot of decisions to make in the very near future. We love you
Jeff and Allison
Friday, April 18, 2008
Friday April 18th Update
We safely made it to Johnson City yesterday. The ride wasn't too bad and the kids all did OK. It was a pretty long ride none the less and were glad to finally arrive. Everyone has been having a great time. Today me and Allison and Ashlyn, Katelin, and Madison all went to the Bristol Race track and took a tour. I was at the Spring race this year and thought the kids would find it interesting. The highlight of the tour was getting to take a couple of laps in the van we were in. They weren't very high speed laps but none the less they were laps at Bristol. After that we got to get out and walk around the track. The banking in the turns is so steep you can barely walk up it but the kids climbed up the banking and we got some good pictures. Upon leaving the track we noticed that the gate to get down to the track was still open and there was nobody there. I wanted to so badly go back down there as we were leaving for a couple of more laps. But then I saw the headlines in my head........
" A Florence Alabama man, along with his wife and 3 daughters, was arrested today for turning a few laps at Bristol Motor Speedway in a Ford Expedition...." Yeah we passed on the temptation.
Dawson's seizures are still on a little bit of an increase. I did call his Neuro and the nurse said to remain on the current dosage of Topamax and we will hold off on doing anything until we see what his EEG looks like this coming Monday. His seizures were on a decline and I hate going backwards. They are not as bad as they have been in the past but instead of his 1 to 2 clusters with 3-10 seizures per cluster he is back to having 4-5 clusters with anywhere from 5-30 seizures per clusters. We hope to figure out what has caused the increase. We also hope to see not only his seizures decline again but to go away all together. We will not stop until they do. Please continue to pray for healing in Dawson.
Jeff and Allison
" A Florence Alabama man, along with his wife and 3 daughters, was arrested today for turning a few laps at Bristol Motor Speedway in a Ford Expedition...." Yeah we passed on the temptation.
Dawson's seizures are still on a little bit of an increase. I did call his Neuro and the nurse said to remain on the current dosage of Topamax and we will hold off on doing anything until we see what his EEG looks like this coming Monday. His seizures were on a decline and I hate going backwards. They are not as bad as they have been in the past but instead of his 1 to 2 clusters with 3-10 seizures per cluster he is back to having 4-5 clusters with anywhere from 5-30 seizures per clusters. We hope to figure out what has caused the increase. We also hope to see not only his seizures decline again but to go away all together. We will not stop until they do. Please continue to pray for healing in Dawson.
Jeff and Allison
Wednesday, April 16, 2008
Wednesday April 16th update
So tonight we are getting ready for our trip to Johnson City Tennessee. It's getting close to 800 now and we are set to leave at 500 in the morning with hopes that all 4 kids will at least sleep a little bit. Are we even close to being ready to go???? NOOOOOOOOOO I hate preparing for trips. I really don't even know what to do to get ready. I just wait for instructions from Allison and try to deliver when she needs something. We have really been looking forward to going and can't wait to finally get there.
No change in seizures today. If anything he might have even had a little more than usual. But he slept so good last night. He only woke up twice which is extremely unusual. It's a known fact that these kids with seizures have weird sleep patterns and for the most part they just don't sleep well at all. So when you have a night that he only wakes up twice. Well you just have to brag a little about it. I am sure tonight will be the same ole same old but we are grateful for the good nights sleep we got.
Pray for us as we travel tomorrow. We will still be posting while we are there and we thank you for checking in and seeing how Dawson is doing. We love you guys!!
I have to start packing ( Instructions from Allison)
Jeff and Allison
No change in seizures today. If anything he might have even had a little more than usual. But he slept so good last night. He only woke up twice which is extremely unusual. It's a known fact that these kids with seizures have weird sleep patterns and for the most part they just don't sleep well at all. So when you have a night that he only wakes up twice. Well you just have to brag a little about it. I am sure tonight will be the same ole same old but we are grateful for the good nights sleep we got.
Pray for us as we travel tomorrow. We will still be posting while we are there and we thank you for checking in and seeing how Dawson is doing. We love you guys!!
I have to start packing ( Instructions from Allison)
Jeff and Allison
Tuesday, April 15, 2008
Tuesday April 15th update
Dawson has had a couple of pretty good days. Still not much change in seizure activity but he continues to be a pretty happy baby in spite of them. I wish we could say the same for us. Were sick to death of seeing them.
I talked to his Neurologist the other day by fax. Yep that's right. A fax. Those of you who are going through this already know that you can never talk to a neurologist by phone. You have to call the nurse, the nurse will then ask your questions to the doctor, the doctor will give the answer to the nurse, and then the nurse will call you back. Usually we get an answer in about 6 hours and hopefully nothing was lost during translation of all the messages. Soooo. Now I just send the neuro a fax with my questions and try to cut out some of the talking back and forth with the nurses. Anyway I was inquiring what the next step was going to be seeing how he is on the max dosage of Topamax and its not working. She mentioned us going to Atlanta to see a Genetic specialist who will look at his labs further to try and nail down whats causing his seizures.
She mentioned doing a muscle biopsy there as well???? I am kinda wishy washy on this whole thing. I hate to put him through any more testing and a muscle biopsy seems pretty invasive to me. Do you do that to your child on the " chance" that they may find something. And if the treatment is still going to be just trying this med and then that med and then another med, whats the point of putting him through that.
In the mean time we have another EEG scheduled for this coming Monday. She said that depends on how that one looks it will determine what drug we try next. Sometimes we feel as though we are just reaching into a grab bag of seizures medications and what we pull out is what we try next. I don't mean to sound all down about this because God has truly blessed us and we have seen miraculous healing in Dawson already. Its just that sometimes you cant help feeling like your just spinning your wheels. We are running as hard as we can we just cant seem to get anywhere fast.
We pray that God will give us answers to be able to do what is best for Dawson. Pray with us as we seek his knowledge and an answer to stopping these seizures
I talked to his Neurologist the other day by fax. Yep that's right. A fax. Those of you who are going through this already know that you can never talk to a neurologist by phone. You have to call the nurse, the nurse will then ask your questions to the doctor, the doctor will give the answer to the nurse, and then the nurse will call you back. Usually we get an answer in about 6 hours and hopefully nothing was lost during translation of all the messages. Soooo. Now I just send the neuro a fax with my questions and try to cut out some of the talking back and forth with the nurses. Anyway I was inquiring what the next step was going to be seeing how he is on the max dosage of Topamax and its not working. She mentioned us going to Atlanta to see a Genetic specialist who will look at his labs further to try and nail down whats causing his seizures.
She mentioned doing a muscle biopsy there as well???? I am kinda wishy washy on this whole thing. I hate to put him through any more testing and a muscle biopsy seems pretty invasive to me. Do you do that to your child on the " chance" that they may find something. And if the treatment is still going to be just trying this med and then that med and then another med, whats the point of putting him through that.
In the mean time we have another EEG scheduled for this coming Monday. She said that depends on how that one looks it will determine what drug we try next. Sometimes we feel as though we are just reaching into a grab bag of seizures medications and what we pull out is what we try next. I don't mean to sound all down about this because God has truly blessed us and we have seen miraculous healing in Dawson already. Its just that sometimes you cant help feeling like your just spinning your wheels. We are running as hard as we can we just cant seem to get anywhere fast.
We pray that God will give us answers to be able to do what is best for Dawson. Pray with us as we seek his knowledge and an answer to stopping these seizures
Sunday, April 13, 2008
Sunday April13th
Dawson has had a good weekend seizure wise. He has only had one cluster yesterday and so far today. It might be only my imagination but ever since going up on his dose of Topamax he seems a little " weaker" than usual. This evening has been a little better but this morning he seemed a lot more tired and it was harder for him to sit up. I know that muscle weakness and tiredness are some side effects of the Topamax and hopefully he will adjust to this new dosage. Allison had to work today so I got to spend the day with both of them. It was a big treat and a lot different as we are usually both home together on the weekends.
He still continues to do well and we are trying to get him to get up on all fours and start crawling. So far he doesn't seem very interested in it at all but I am sure soon he will. We mentioned the other day that we thought he was cutting some teeth. Well he is cutting both front teeth and his two "I" teeth at the same time.
We hope you all have had a great weekend and we thank you for your prayers. Continue to lift him up the Lord.
We love you
Jeff and Allison
Friday, April 11, 2008
Friday April 11th
Dawson has had a pretty good day. His top left tooth has begun to break thru with the right one not far behind. He has not been overly fussy while teething. He continues to have seizures daily. The seizure activity varies from day to day. The only real difference I can see with the topamax is the number of clusters per day has decreased. Instead of 3 to 4 clusters, we are down to 2 to 3 clusters per day. Other than that, it still varies as far as how many spasms in each cluster. We increase his dosage tomorrow to 50 mg twice daily.
The OT therapist came out today. She was really good with him. He didn't really fuss with her, only when she put him on his tummy. He does not like being on is tummy long. However, it has been told to me MANY times, how very important it is for babies to have tummy time. So, he must be in his belly, even if he fusses the whole time.
Well, I hope everyone has a wonderful weekend! Thanks for checking in and please continue to lift him up in prayer.
We love you,
Allison & Jeff
The OT therapist came out today. She was really good with him. He didn't really fuss with her, only when she put him on his tummy. He does not like being on is tummy long. However, it has been told to me MANY times, how very important it is for babies to have tummy time. So, he must be in his belly, even if he fusses the whole time.
Well, I hope everyone has a wonderful weekend! Thanks for checking in and please continue to lift him up in prayer.
We love you,
Allison & Jeff
Wednesday, April 9, 2008
Wednesday April 9th update
Here are some pictures of our little fishing outing we had last weekend. I had to work pretty hard to keep crickets on the hook but the girls had a great time. Also posted is a little video of Dawson cutting up and blowing raspberries. Its pretty funny so we thought we would share.
Seizures the past couple of days have been a little more numerous than usual. He is back to having some of the bigger numbers per cluster which we hate to see. We are wondering if stopping the Keppra is allowing him to have more?? At any rate it does not appear that the Topamax is going to be the answer. We are scheduled to go up on dosage one more time before his next EEG but I figure that if it was going to work, it would have by now. SOOOOOOOO..... Now we will have to very slowly titrate the dosage all the way back down until he is weened off of it which means only one thing to me. Wasted Time........... UGGGGGG. Allison and I find this to be very frustrating at times.
He had his second session of Physical Therapy today. Allison said it went pretty good. Of course he fussed a lot but I think that's pretty common. Anytime you try to make a baby do something it doesn't want to do that's usually the outcome. On the positive side, they came home with this cool exercise ball and I have already decided that if Dawson doesn't like using it, then Me and Madison will use it as a new kickball. ( I'm Kidding)
His sleep last night was HORRIBLE. It has been a while since it has been that bad. We suspect that he is trying to cut his top front teeth. Hopefully tonight ( with a little Tylenol) we will sleep better.
We love you guys and we are so thankful for each and every one of you who have been faithfully keeping up with his progress. We are especially thankful for your prayers as we struggle to get his seizures stopped. Have a great day everybody
Jeff and Allison
Monday, April 7, 2008
Monday April 7th Update
The last couple of days continue to be " OK" as far as seizures go. He is still having them daily but there numbers still remain relatively low compared to where we were a month or two ago. He continues to progress well and most importantly of all.. He is happy. He has his Im hungry or I am tired fussy moments but generally speaking he is such a happy baby. We still remain amazed and thankful to God for how well Dawson is doing.
We all had a great time fishing Saturday. So much so that we went back Sunday and did it again. The girls really enjoyed the fishing time and I have to say I enjoyed watching them have such fun.
We are getting ready for a trip to Johnson City Tennessee next week. We have some family up there that we love seeing and we are looking forward to some time away. What I am not looking forward to is the 7 hour drive with a 9 year old, a 6 year old, a 3 year old, and a 7 month old.
And Allison says " ME TOO"
When we get home we will return to Huntsville for Dawson's next EEG. So busy times for the Wade family right around the corner. We wouldn't have it any other way.
Thanks for checking in on Dawson and for all your prayers. Continue to lift him up to the Lord such amazing healing has already taken place.
We love you
Jeff and Allison
We all had a great time fishing Saturday. So much so that we went back Sunday and did it again. The girls really enjoyed the fishing time and I have to say I enjoyed watching them have such fun.
We are getting ready for a trip to Johnson City Tennessee next week. We have some family up there that we love seeing and we are looking forward to some time away. What I am not looking forward to is the 7 hour drive with a 9 year old, a 6 year old, a 3 year old, and a 7 month old.
And Allison says " ME TOO"
When we get home we will return to Huntsville for Dawson's next EEG. So busy times for the Wade family right around the corner. We wouldn't have it any other way.
Thanks for checking in on Dawson and for all your prayers. Continue to lift him up to the Lord such amazing healing has already taken place.
We love you
Jeff and Allison
Saturday, April 5, 2008
Saturday April 5th update
Happy Saturday everybody. Yesterday was a much better seizure day for Dawson. He had only 6 after one nap 3 after another and we haven't seen anything yet this morning. He turned 7 months old yesterday so we thought it would be a great time to post a little video of him. He is growing up so fast and I just cant believe how big he is getting to be. We are as proud as punch of him!!!
Yesterday the Occupational Therapist came out to visit with Dawson. The only concern she had was the lack of usage in the left hand. He uses it just fine but they want him to use it as much as he does his right hand. Other than that she thought he looked great. We have been given some exercises that we will be doing with him to further help rolling and sitting and getting him poised to crawl. ( I'm not sure I am ready for him to be mobile yet.) He is interested in EVERYTHING that he sees and must pick up everything he can get his tiny little mitts on. I cant imagine how its going to be when hes on the loose.
As of this morning we titrated up on his Topamax. Most times we really have to struggle to get all those tiny little pellets down him. Somehow he knows when the spoon has just baby food on it VS. a spoon with baby food and those stupid pellets. He has also learned to how keep most of the baby food in his mouth, while at the same time, spit out all of the Topamax. If your too close to his face when he does this its alot like being shot at with a BB gun. ( Dont ask me how I know what this is like. My folks read this blog and I would rather not explain.)
We are also glad to have Ashlyn and Katelin with us this weekend. Madison loves them being here and I think this afternoon Im going to take all these girls fishing. We will be sure to take some pictures and share with everybody.
We hope everybody has a great weekend and we love you
Jeff and Allison
Thursday, April 3, 2008
Thursday April 3rd Update
So the big news of the day is that we have gotten word back from his Neurologist regarding all the testing we had done in Birmingham. Allison talked to the Neuro nurse and all of the test came back normal. Neuro transmitters are fine and there were no genetic abnormalities. What awesome news and we give God all the praise for this. I guess the only problem is that we STILL dont know why he is having seizures. To my knowledge, we have just about ruled out every possibility there is. We are anxious to talk to the Doctor herself to see what she thinks could be the reason now.
We were instructed to take him off of the Keppra, which by the way, is the only med he enjoys taking. He loves that stuff and drinks it down like candy. We are also supposed to go back to Huntsville for another EEG April 21st. This is after he has been on Topamax 50mg morning and night for one week. Thank goodness this wont be another one of those 24 hour deals. I don't know if we can handle another one of those. Instead we will go in, get him all hooked up, wait for him to fall asleep ( yeah right) and after he wakes us they will take the leads off and send us home.
Speaking of sleep, he did take over a two hour nap today while at Grandmom's house. Slept all by himself without waking. That is a VERY VERY long nap for Dawson. We were glad he finally got to take himself a decent nap.
Today has been a little worse as far as seizures go. Especially this evening. He has taken several of his little short 10-15 min naps and has had seizures after waking from each one of them. I know I have said it before, but I have really grown weary of watching my son have these seizures. Without a doubt I KNOW God is at work here but some days the Father in me just wants these things to stop. The up side of this is that we have gotten to witness miracles in Dawson's life. Watching Dawson fight through these seizures, and despite the diagnosis, watching him excel and grow has been the most inspiring thing I think I have ever seen.
We praise God for the great things he has done in our lives and look forward to whatever tomorrow brings. I have no idea how people with no faith cope with something like this. Our faith is all that we have and what more could we possibly need.
We still remain overwhelmed by the amount of people praying for Dawson. We wish there was a way to put into words how much we appreciate it but there is just no way to do it. We do thank you for your prayers.
We love you
Jeff and Allison
We were instructed to take him off of the Keppra, which by the way, is the only med he enjoys taking. He loves that stuff and drinks it down like candy. We are also supposed to go back to Huntsville for another EEG April 21st. This is after he has been on Topamax 50mg morning and night for one week. Thank goodness this wont be another one of those 24 hour deals. I don't know if we can handle another one of those. Instead we will go in, get him all hooked up, wait for him to fall asleep ( yeah right) and after he wakes us they will take the leads off and send us home.
Speaking of sleep, he did take over a two hour nap today while at Grandmom's house. Slept all by himself without waking. That is a VERY VERY long nap for Dawson. We were glad he finally got to take himself a decent nap.
Today has been a little worse as far as seizures go. Especially this evening. He has taken several of his little short 10-15 min naps and has had seizures after waking from each one of them. I know I have said it before, but I have really grown weary of watching my son have these seizures. Without a doubt I KNOW God is at work here but some days the Father in me just wants these things to stop. The up side of this is that we have gotten to witness miracles in Dawson's life. Watching Dawson fight through these seizures, and despite the diagnosis, watching him excel and grow has been the most inspiring thing I think I have ever seen.
We praise God for the great things he has done in our lives and look forward to whatever tomorrow brings. I have no idea how people with no faith cope with something like this. Our faith is all that we have and what more could we possibly need.
We still remain overwhelmed by the amount of people praying for Dawson. We wish there was a way to put into words how much we appreciate it but there is just no way to do it. We do thank you for your prayers.
We love you
Jeff and Allison
Wednesday, April 2, 2008
Wed. April 2nd
Dawson had his first session with his physical therapist today. It went pretty well, he got a little fussy, not to happy about being put on his tummy. She will work with him once a week. We will also be having an occupational therapist come out on Friday.
He had more seizures today than he has in the past few days. He had 15 in one cluster, than just one in another, then tonight he had 28!!! There is just no rhyme or reason to these things!! It is SO frustrating!!!!!
Other than that, he is in a pretty good mood. Giving him his medicine continues to be a challenge, but most of it gets down. He continues to babble and blow raspberries. We got some of it on video that we will have to post sometime soon.
Thanks for checking in and please keep Dawson in your prayers!
Allison & Jeff
He had more seizures today than he has in the past few days. He had 15 in one cluster, than just one in another, then tonight he had 28!!! There is just no rhyme or reason to these things!! It is SO frustrating!!!!!
Other than that, he is in a pretty good mood. Giving him his medicine continues to be a challenge, but most of it gets down. He continues to babble and blow raspberries. We got some of it on video that we will have to post sometime soon.
Thanks for checking in and please keep Dawson in your prayers!
Allison & Jeff
Tuesday, April 1, 2008
Tuedsay April 1st
So I am sitting here trying to think up some clever April Fools joke to play on you guys and I'm getting nothing. I think I am losing my wittiness in my old age.
Dawson has had two clusters of seizures today on with 7 and one cluster that had 2. We have seen a decrease in the number of seizures ( Praise God for that!!!) but we just cant seem to get over the hump where he has none at all. Oh what a celebration there will be when they stop.
We found out some of the test results from our UAB trip. The only thing that we know for sure is that the neurotransmitters were fine. I have no idea what that means so we hope to get to talk to his neurologist in detail on these and the rest of the results tomorrow. We will post results as soon as we get them.
We are going to try Peaches tonight for supper with Dawson. Hopefully he will like them as much as he is liking bananas and applesauce.
Thank you for your friendship and prayers. We are so thankful for each and every one of you
Jeff and Allison
Dawson has had two clusters of seizures today on with 7 and one cluster that had 2. We have seen a decrease in the number of seizures ( Praise God for that!!!) but we just cant seem to get over the hump where he has none at all. Oh what a celebration there will be when they stop.
We found out some of the test results from our UAB trip. The only thing that we know for sure is that the neurotransmitters were fine. I have no idea what that means so we hope to get to talk to his neurologist in detail on these and the rest of the results tomorrow. We will post results as soon as we get them.
We are going to try Peaches tonight for supper with Dawson. Hopefully he will like them as much as he is liking bananas and applesauce.
Thank you for your friendship and prayers. We are so thankful for each and every one of you
Jeff and Allison
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