Dr visit

Dawson had a visit with the Neuro the other day. Nothing earth shattering....

There is some new kind of testing they are looking at in China with I.S. Kids who have failed ACTH treatment and then the rest of the things she said about that sounded like this to me.............................

adsjfadj jaldsjfa;ldsjkf jal;sdjfal;dsjf jafoijeanf aojeojjoijef lajlieajnieja oiuoaiejaeita......................

Beacuse I have NO IDEA what she was talking about.

Its not like I'm dumb or anything but when she starts talking about the inner workings of the human brain and all the gigantic medical words, Well I start to kinda just zone out HA!!

So pending insurance approval, we are considering this new testing. Its only a blood draw and there is a lab in Florida that will do the testing.

The good news is that Dawson was MUCH better in the Dr's office than he was last time. We asked the nurses to do weight, ears, and blood pressure LAST instead of first thing because last time it freaked him out really badly and made him act like a crazy person for almost 2 hours.
Aren't we smart????

She also wants us to try the Modified Atkins Diet. Certainly not opposed but we are worried how that is going to be because Mr. Dawson has become a VERY VERY picky eater the past few months. And when he does eat..... yep you guessed it... He LOVES his carbs...

Not much of a meat eater, but loves fruit snacks, bananas, fruits, vanilla wafers, cereal bars, etc, etc. None of these things would be allowed on this diet and Im realistically wondering what is this kid going to eat. I tested the waters tonight with some of those vienna sausages ( the kid friendly kind that Gerber makes.) When he would open his mouth to scream that's when I would seize the moment and stuff the food in.......

He got very upset and just refused to eat the stuff ( not that I blame him) and so round one goes to Dawson.

Soooooo. what to do?? what to do??

Please keep us in your prayers. Seizures have been a little on the rough side lately and with some pretty high numbers. The day we saw his neuro he ended up having close to 100 that day... YUK!

We remain very aware of all the wonderful things God is doing in our lives and strive to stay in the center of HIS will during this time. In return, he continues to shower us with an indescribable peace.

Our love to all

Jeff and Allison

Noahs ark

If anybody has one of these started please let me know. I have some kids and a few animals I would like to bring aboard.....

Will it ever stop raining??

So the latest scoop on Dawson is as follows:

Seizures are a little better but no other seizure free days since the last post.

Mood is definitely improved with only a few outburst here and there and they don't last quite as long.

We are completly weened off of Keppra ( thank God)

We have reached Maximum dosage of Lamictal.

Still on the same dosage of Topamax.

And we have a Neuro visit in Huntsville tomorrow. ( Should be interesting and well let everybody know.)

In the meantime Dawson and Madison have become quite the little buddies. I mean, they always have been, but they spend HOURS playing together now and are having the best fun. Its awesome to watch!!

So that's about it for us for now. Like I said, well let everybody in on what his Doctor says when we get back tomorrow.

God bless and we love you all

Jeff and Allison

24 hours

Just a little video of Dawson working his game underneath the basket. Looks like a regular chip off the old block huh?????

Yesterday we went more than 24 hours without a seizure!!! That's right, we had no seizure activity yesterday and we couldn't be happier. For those of you who know us, you already know we celebrate EVERYTHING that can be construed as good news. He did wake up this morning and have a cluster, but oh how grateful we are for that short spell without any!!

I try not to get too ahead of myself but I remember that when they stopped last time, they stopped very slowly. One day with zero, then a week later another day, then we would string a couple of days together so on and so forth. Wouldn't it be awesome if yesterday was the the first day of becoming seizure free again.........

Just the thought of it gives me chills....

The downside to yesterday is that Dawson was horrible. Its hard to know whats going on in that little brain at times, but yesterday you could tell he was really struggling. First of all he slept for almost 12 hours. He has NEVER done that. As a matter of fact, I went in at around 10:00 and had to wake him up because he was way past due for his meds. The first part of the day seemed ok but then all of a sudden he would have this terrible outburst. Anger and rage were showing their ugly heads and then he would be ok again for a little while. Then in a blink of an eye, he would have this terrible outburst again. It wasn't like he was having a temper tantrum or anything like that. He would just literally out of the clear blue have a complete meltdown. Hitting, slapping, throwing stuff..... This went on all day until he finally went to bed last night.

So our prayer is for another day seizure free. Just one more would do nicely. ( Hey, I'm trying not to be greedy here.)

Thank you God for the one day we got!!!

And thank you for your prayers.

Our love to all

Jeff and Allison

Birthday Picture Marathon

Birthday Boy

Tomorrow September 4th Dawson turns 2

Can you believe it???

Where is the time going??

This past year has been pretty awesome. Especially since we spent the greatest part of the year seizure free.

God has blessed this family in sooooooooooooooo many ways. So much so, that I can't even begin to count.

So without further delay...........


Happy Birthday Dawson!!! We love you very much!!

Jeff and Allison