Sept 25 2012--Oh Happy Day!

I posted these yesterday on my FB and meant to do it here for those who don't have that access. What a wonderful day! We are so grateful to the Lord for what He has done in our lives through this whole ordeal. Our God is an awesome God! Much love and appreciation to all of you who have lifted our little boy up in prayer. Also, much love to my husband, my best friend....9 years since we said our "I do"and we are Blessed beyond measure. I love you Jeff!

2 Years Seizure Free

We have been absent for a while.... So in case anybody noticed I thought I would write a few lines in hopes that you will celebrate with us tomorrow.. 2 years seizure free!!! The words just roll right off the tongue.... 2 years seizure free... I just love the sound of that!! Dawson is doing amazingly well. He had a fantastic summer where he learned to swim and was chocked full of fun for him. To say he is doing amazing just really doesn't do him justice.. You would almost have to see for yourself. Seizure freedom has changed our world just as dramatically as the world we were ushered into starting with his first seizure.. ( I love this world MUCH better) Dawson is excelling in school, and very easily carries on sentence style back and forth conversations. After thousands and thousands of seizures, hospital visits, test after test, developmental delays.. we are here... Unbelievable, but were here. We no longer speak much of infantile spasms. It is a world that we lived in and God allowed us an exit door. We took it running and never looked back. Two years later, we remember every intricate detail of every day with seizures, and yet at the same time it seems like some sort of bad dream that you remember you had but have a very hard time remembering any of the details. No longer do I look at Dawson sleeping and worry about him waking up and having seizures, no longer do I worry what is happening in his brain, we don't sweat EEG's anymore because they are always normal.. He is a healthy, happy, smart, worm digging, talking and singing, burping, drink spilling, sister bothering, peanut butter and jelly on my face wearing normal little boy.. and I couldn't be happier.. Happy two years seizure free Dawson!!!! Thank you Jesus!!

Dawson graduates

Good lookin boy...... and smart as a whip too!!! He had a great school year, learned SO much and these teachers are AMAZING.. His teacher Miss Russell seemed to fall in love with him from the beginning. So So thankful for this lady and this school.. As for everybody else.. the picture says it all. Everybody is growing up :(

Long overdue update

Well, where do I begin?? It has been so long since we have done an update!!! I guess in a way that is good news. Good in the way that there just hasn't been that much to talk about. We are rolling up on almost a year and a half of seizure freedom!! There was a time when I seriously doubted that I would ever be able to say those words.. "seizure freedom" and yet here we are, and those words just roll off the tongue so nicely....

Dawson continues to flourish. He is talking so good now and is able to carry out conversations with no problems. His teachers at school drone on and on almost daily about how well he is doing. His progress reports are nothing short of amazing and it makes me reflect back to a short time ago when all these tasks seemed either too difficult or impossible for Dawson to do. Now those same tasks are just part of his daily routine and he is able to tackle them with no problems.

Dawson is fully potty trained, can dress himself completely from socks and shoes all the way to pants and shirts. He is pretty much just as self sufficient as any other 4 year old out there. Yes indeed, our little guy is growing up and walking his own little path.. He gets very irritated when people try and help him with things... to the point where he will shout at you.." I CAN DO IT MYSELF!!!" LOVE IT!!!

The only real remnants of that horrible world we lived in, are left in the fact that we are dealing with some behavior type issues. There are really really good days..... and then there are days that quite frankly are just not so good. We've tried almost every type of behavior modification there is to try... ( next on the list is bamboo shoots up the finger nails) IM KIDDING!!! relax.... There just seems to be a disconnect from the fact.... If i do this...... then Im going to get in big trouble... If he indeed does have that filter somewhere... ITS BROKEN!! His biggest thing now is spitting... Yep.. when he gets mad or irritated, he starts spitting.... Put him in time out and he spits while hes sitting there.... Punish him for spitting in time out and he spits on you.... What do you do???

But considering where we could be... I will take the behavior issues any day of the week and twice on Sunday. Speaking of Sunday... HAPPY EASTER to all of you.. How great it is that we serve a RISEN savior... A savior who is ALIVE and still preforming the same miracles he did 2000 years ago while he walked this earth... I know this to be a fact because my son is one of those miracles.. A healing hand that reached over and touched a child.... A touch that healed seizures and healed a family.. Praise God and Happy Easter

Jeff

Potty trained

POTTY TRAINED!!!.. oh yeah!!!!!!!!!!

Dawson has been in big boy underwear for more than 3 weeks and is doing fantastic.. #1 and #2 in the potty.... no problemo!!

We all are doing great and pray that you are too!

Jeff

New Year

Some pics of our little hero.. Enjoy!!

Sentence of the week from Dawson.... " Daddy, I need some medicine. My head is hurting again"
( as a side note to this, we think Dawson likes the taste of the orange liquid motrin which is what is sparking this) We hope he is not really having this many headaches. Wondering though if kids with cortical dysplasia are more prone to headaches though??? I mean that really would make sense..

any thoughts??