Friday January 4th Update

Ok... lots of information

We just returned home from Crestwood hospital in Huntsville where Dawson had his latest VEEG. He was hooked up upon our arrival around 3:30. The method used to keep all the leads on his head was a little different from what we saw at UAB and by 6:30 the wrap was literally sliding up his head and taking all the leads off with it. The EEG technician had to come back and glue the leads down on his head. That worked really well except now we have a baby with super glue all in his hair....

Dr Bebin ( his neurologist) came in about 5:30 yesterday evening and took a look at his EEG and said it looked really good. There were no signs of Hypsarhythmia ( i will define that in a min)

She came back in this morning and took another look and said the same thing. They were able to capture some of the small clusters of seizures he's been having on his EEG, and Dr Bebin said they were very, very mild and showed no signs of Hypsarhythmia.

Hypsarhythmia.... imagine looking at an EEG and seeing all these little lines going across the screen and all of a sudden they all spike in an upward direction. That is called Hyppsarethmia and that type of brain activity is what is used to define, and diagnose Infantile Spasms. That type of brain activity is what keeps children with Infantile Spasms from developing normally mentally. She has not looked over his entire EEG ( she is doing that today) but from what we can tell right now he shows no signs of having that type of disabling brain activity. Dr Bebin is going to call us back this evening after looking it over it in its entirety.

We were overtaken with emotion last night as we sat there and watched his EEG. We both remembered what his last one in December looked like. It was a bunch of lines all going in different directions in a very unorganized pattern. Last night we watched all the lines grouped together moving in a very rhythmic and organized pattern. I can't even begin to tell you how awesome that was.

as we were standing there watching it we were reminded of two things. Gods awesome healing power, and the power of prayer. The Doctors, nurses, ACTH, Keppra, VEEG's are all just tools. Jesus is the one who heals.

For now we are going to up his Keppra from 1.5 ml to 2 ml to try to stop the small clusters of seizures from happening and our next appointment is next Friday.

The event was very tiring for Dawson as its hard to sleep with all that stuff on your head. But he pulled through like a trooper as always. He slept all the way home and is still asleep in his car seat an hour and a half later.

After hearing from Dr Bebin this evening we will post the news.

We love and are thinking of you all

Jeff and Allison