Saturday, January 26, 2008

Saturday January 6th update

Good news.. Today we have yet to see any seizure activity!! He got his first dose yesterday morning and then again yesterday evening. He did have some seizures yesterday but we have to remember that its takes a while to get enough Vigabatrin in his system to work. Hopefully that is what we are seeing now. He had a dose this morning and so far there has been no change in his personality ( which is what we want)

He has caught what were calling " The great wade head cold of 08" I think we have been passing it around to one another and it finally caught up with Dawson. He is very stopped up and of course that interferes with his eating and sleeping. He had a very restless night last night and we hope he gets over it quickly and doesn't progress into something worse.

We have seen a big change in the " puffiness" in his face over the last few days. The ACTH injections he was on caused the swelling, and finally its starting to go down. I kinda liked the puffy cheeks myself. At 4 months he is 27 inches tall and weighs 21 lbs. We have had several college scouts sniffing around the house recently. j/j

Thank you for your support and prayers. We certainly could not do this alone and you all are such a blessing for us.

Jeff and Allison

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