Happy Sunday to everyone. Another good day for Dawson today. His sleep is a little off again. He is going to sleep ok but for some reason can't seem to nap for very long. Today started the last week of his ACTH injections. We are down to .5 ml ( which is almost nothing) but its part of the weaning process. Allison is looking forward to his last shot this week.
We have started to see a decline over the past couple of days in the number of seizures per episode. Most likely due to the increase in his Keppra. We will go up to 3ml twice a day starting the end of this week. We both feel that the Keppra has done a great job at controlling his seizures but we also feel like it will take something else to stop them at this point.
He continues to be happy and curious and we are so thankful to have him.
God bless and we love and are thinking of you all!
Jeff and Allison
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Jeff,
I just got the website yesterday. My dad has been keeping me updated on what has going on. I just read your entire blog. Please send me your email address to avaloncm@yahoo.com
One of the scariest moments is when the doctors lay out side effects. But you really don't have a choice. You pray and trust that God will protect you from the side effects.
Email me.
Michael
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