Dawson is doing well this morning. He had a cluster of about 11 little seizures last night, They were those myoclonic seizures that we have been talking about in the last couple of post.
He slept well last night and we have not seen any seizure activity yet this morning. When they happen its always as he is waking from sleep, so we watch him pretty closely for about 30 minutes after each nap. We are ready to start another run of some seizure free days. Maybe today will start that.
The amount of ACTH in his injections decreased this morning, and this week he will only be getting .10 ml and next week he will get .05ml and then we will be done. He really doesn't even cry anymore when he gets his shot, but the process has still been hard. Especially for Allison.
Even though its been hard we are thankful for the ACTH, despite its side effects, for it has certainly done its job.
As mentioned before his mood continues to be good as we ween off the ACTH and we look forward to seeing the "puffiness" go away over the next few weeks.
Thank you for thinking, checking in, and praying or Dawson.
The Wades
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1 comment:
Thank God and the power of prayer! So very pleased to hear such encouraging news regarding the Hysparythmea (sp?) That's one mighty special young man you guys have there.
Uncle Jim
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