Hope everybody had a great weekend.
Over the past several days we have seen a decrease in seizures ( Praise the Lord) He is back to only having one to two clusters with only a handful of seizures per cluster. This is far better than we where we were a couple of weeks ago. Im not sure if decreasing the Topamax did it, or maybe starting the Lamictal helped. Im not even really sure that I care, as long as they are on the decline. Please pray that he will continue down this path of less seizures.
Allison and I have decided that we will take the trip to Atlanta to see the Metabolic Neurologist that his current Neuro suggested. This will mean more testing but we both feel that if finding the reason ,will help Tailor his treatment ,then we must leave no stone unturned. I guess the good news is is that because he is so young, he will not remember any of the stuff we have put him through. That's what we have been telling ourselves to make us feel better anyway LOL
He continues to be a happy baby. VERY curious about everything and we enjoy watching him learn and grow. Thanks for checking in on him and thanks for your prayers
Jeff and Allison
Subscribe to:
Post Comments (Atom)
2 comments:
So thrilled beyond words his seizures are on a decline. We will continue to hope that they are on the way out for good! He is always in our thoughts and prayers.
Isn't it crazy to even say that you're happy he has LESS seizures! Only another epilepsy mommy or daddy could *get* that! Truly, I'm celebrating for you guys...for little man Dawson!
We're on the *hunt* too...finding the cause of Trevor's IS has proved to be quite the journey. We're in a holding pattern...waiting for ins approval. But like you guys...we'd move mountains for Trev!
We'll be praying alongside you guys as you move forward with all the testing...
...danielle
Post a Comment