Yesterday was another seizure free day for Dawson. That's two days in a row!! We are once again thrilled. We have taken it upon ourselves to make some decisions about his current meds. We were supposed to completely be off of the Lamactil as of today per Dr's orders BUT.........
because he stopped having seizures Allison and I decided not to make any changes in his meds.
Its the old " If it ain't broke don't fix it" rule. We also by accident missed a nightly dose of his B-6 the other night and since he hasn't had any seizures since then we have stopped giving that to him as well. We do not claim to know more than a neurologist but in the past 7 months we have learned A LOT and I think in some situations ( like this one) parents actually know whats better for their child even more than a neurologist does. So with that being said, until we see any changes in him, we wont be making any changes in his meds.
New trick of the week........ ( drum roll please)............... he has learned to clap his hands. TADAAAAAAAA
We do it, and then he does it. He seems to like the the noise his little hands can make and we absolutely love seeing him do new things. We haven't spoke much about his eating habits lately so just a quick word about that. He LOVES to eat. There are a few things we have come across that he doesn't much care for but other than that he eats most of whats put in front of him. Its nice to see such a good appetite. I know a lot of the meds these kids have to be on to control seizures can drastically effect their appetite and we seem to have been spared that thank goodness.
Today, we are in a very good place and we wish we could just sorta freeze time but we realize that tomorrow is another day and we do not know what tomorrow is going to be like. Things could be just as they are today, or they can be drastically different. This is the life you have to live when you have a child with a seizure disorder.
Have a great day everybody and we love you
Jeff and Allison
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2 comments:
If I have learned one thing on this journey it would be to trust yourselves as the parents of these children or really in the case of any of our children. We continue to rely on our instincts and I feel the majority of the time we can be right on. Bask in the seizure free days. One day at a day, one moment at a time, one now at a time. Our prayers continue.
Congrats! Parents really do know their child best. I am thankful that my son's neuro has always allowed us to have input on med decisions based on what we are seeing.
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