Yesterday Dawson had a cluster of 22 seizures then had about 5 just right before he was going to sleep last night. That is something new. When he has them, its ALWAYS when he is waking from a nap. So obviously when we see something new its concerning.
His Neurologist wants to take him off the Lamactil. She thinks its ineffective at this point. But she wants us to remain on the Topamax ( which I think has been ineffective) Actually, if he is still having seizures that would make both of them ineffective. We are not sure what we are going to try next. We are going to stop by on our way back from Atlanta and I guess we will see what she suggests.
I find myself pretty disappointed at all this. When he started going two and three days with no seizures, I had myself convinced that the Lamactil was going to be our " miracle drug" Now there is going to be something else we have to try with different side effects UGGGGG
With all that being said, God continues to bless us. He has given us a peace about all of this that can only be explained as supernatural. We continue to seek his will in all of this and we are so thankful for such a happy healthy baby boy.
We hope every one has a safe holiday weekend. Thank you for your prayers and support
Jeff and Allison
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1 comment:
It is so difficult to not become disappointed and discouraged even when we know our faith is strong.That is our human side. It sometimes also difficult to separate the two.As long as our prayerful, faith filled ways continue then God certainly accepts and expects the other.We continue our prayers for Dawson's miracle.
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