Well we went back down to the last dose we were on and so far today no seizures. The game continues...........
I cant help but wonder if we have finally hit that " magical dose" of drugs that will stop these stupid things. We have been told all along that its about finding the right drugs (s) and the correct dose. A little too much of this can have little effect, a little too much of that can actually cause seizures to be worse ( which we have certainly seen) so MAYBE just maybe the dose that got him through the entire weekend with no seizures is right amount of the right drugs.
The only problem is, is that the only way to find out is to wait ( which I hate doing by the way) speaking of waiting.. still no word on an actual appointment date for Atlanta. We are starting to get a little frustrated with that wait. I will call again tomorrow and see what the hold up is.
Dawson has been in a great mood today. Little fussy around sleep time but this evening him and Madison are back playing in her room and I can hear him laughing at her all the way in here.
WHAT A WONDERFUL SOUND!!
Thanks for checking in on little guy. Thank you for your prayers. They mean more than you could ever know.
Jeff and Allison
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Laughing.... I long for that, but always rejoice in the progress of these other sweet little ones. I am sure that laugh will make all of the journey thus far, worth it and the journey ahead easier hearing that magical sound! We continue our prayers.
I just want you all to know that I am still praying for Dawson's health and happiness. We have been to Gulf Shores and so I've just gotten caught up on the action since I left. It still sounds very hopeful that things are looking up, literally, for Dawson. He has come a long way and that says a lot for you guys. You are so determined and dedicated to his health. He is so blessed to have such caring parents!
Alli, I hope Mother's Day was wonderful for you!!!!
Love you guys!
Rudy
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