First A quick word about Ashlynn.
She is doing remarkably well. Her blood/sugar numbers are still running on the high side but they are working on getting her insulin doses dialed in.. Its a tricky game!! the big thing is that she is giving herself her own shots. and has been since about day 3 of her diagnosis. I can't even begin to try to explain with words how PROUD of her I am. I sat in awe the other evening at supper as she prepared her insulin pen, and then injected herself with insulin in her stomach.. I never in a million years thought she would be doing that this early in the game... She is a brave and she is strong
Katelin continues to do really well with her diabetes management as well. Proud of both of those girls
Now on to Dawson..
I would love to report that since starting the modified version of the modified Atkins diet that we have seen remarkable changes in seizure activity. The truth is that if anything they have gotten worse.. Very very frustrating to watch this go on and not get any better no matter what you do. We are so ready for a break from seizure. His development has come to an absolute standstill and its just heartbreaking.
The other evening at dinner, it hit me just how crazy our lives are getting to be... Katlein was eating one thing and we were trying to figure up carbs for her... Ashlyn was eating another thing and we were busy counting and figuring carbs for her... And then Dawson was having a seizure now and again in between all that.. Counting carbs, units of insulin, and seizures....
WHEW!!!
But we made it. we survived. Thats what we do around here. This is our New normal and although we don't welcome it with open arms we DO look forward to seeing where God will take us with this.. What an adventure!!
3 of my kids are fighting a battle that requires their attention every single day from the time they wake, until the time they sleep. Probably for the rest of their lives. But tonight, my kids are healthy in spite of it all.. And for that I praise God!!
Your thoughts and prayers for my family over this past week are much appreciated.
We love you all
Jeff
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1 comment:
I have been thinking and praying for your family daily! Hoping all is well with the girls sugar, and that Dawson is having less or NO seizures! I know how hard it is to see seizure after seizure...so frustrating/heartbreaking. I pray everyday that things get better. Give us a call when you have some time to chat.(I wont bother you, I know you are overwhelmed!)
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