Friday, June 11, 2010

Thankful for days like these

Every once in a while we get a day like this.. A day that seems like a dream. A day where our son, who is relentlessly attacked daily by the seizure monster somehow seems to turn the tide and actually beat this thing down with a stick.. Today, seizures have been very few and even more important, today the firestorm in his brain, accompanied by a cocktail of meds were kept at bay and allowed him to be a little boy.. plain and simple, just a little boy.. He has been in a great mood today and this evening. Even to the point he was able to go to his sisters softball game. We never take him because he becomes very irritated very quickly and makes these events kinda miserable.. But not today.. Today he was content to run around, across the bleachers,playing in the grass, sucking on his ring pop, and after about an hour and a half he was ready to go..

He didn't do his usual screaming bloody murder, pinching and hitting everybody in site. He didn't try to bite his pacifier in half.. He simply came up to us and said " home" as a matter of fact.. hes been talking the English language along with "Dawson language" all day long today.. Hes just been a regular kid today... We LOVE days like these and cherish them. We love the days where his true personality overcomes the seizures and the meds.. God gives us days like this as if to say.... I'm still here, Hang in there, I'm going to do big things!!

sigh...... I love days like today!!

This week has been crazy. I have been on vacation this week and have been hanging out with my three angels along with my 14 year old niece from out of town.. So me and the 4 amigos have been together just enjoying each other and doing stuff around town.. Money has been very tight so we've had to be creative in keeping the kids occupied this week.. After 5 days with 4 energetic girls I am exhausted and think my fuse is a little shorter than usual. BUT, i would not trade this time with my kids for anything.

We did finally get some blood work results from our last Neuro appointment. Dawson's levels of Zonegran in his system are at an effective range but there is some wiggle room for an increase. And since hes still having numerous seizures daily, we have added a morning dose of poison to his daily regimen. Too early to tell if its helped any but maybe seeing a slight improvement this week at times... well see how the rest of the week goes.

The Diabetes sistes are still doing well, and we continue to be so proud of how these two handle this medical condition and just because Madison is healthy, I don't see the need to leave her out.. She is doing exceptionally well and handles herself very nicely amongst the older children. That little girl is an awesome blessing!!!!

Allison and I are so thankful for those who have been praying for us over the past weeks.

Thank you Lord for letting us see Dawson today!!

Jeff

3 comments:

Reagan Leigh said...

Glad to hear someone had a good day today! You guys certainly deserve it! Wishing you many more...

Heather said...

Now that was a great read ... love checking in and finding that your little guy has had a good day.Which equates to a good all around day for everyone.Praying for many,many more.


Love from California.

Danielle said...

That made me smile...inside and out!

...danielle