Wednesday, September 22, 2010
Parolled
Thats right, we got early parole for good behavior. We were able to leave Memphis and return home. Ahhhhhhhhhh.... There is no place like home. We look forward to sleeping in our on beds tonight!!!
We got to come home because Dr Wheless felt he had everything he needed from the MRI and the seizures captured on his VEEG..
The results are something we have wanted to hear for a long time, but now that we have heard them, it leaves us feeling a little uneasy.
They found an abnormality in his right frontal lobe and they want to do brain surgery to remove that area. Thats about all I can tell you about it right now as thats pretty much all we know. Its unknown how big the area is, its unknown if its a section of the right frontal lobe or if they will have to remove the entire frontal lobe.. Still more questions than answers at this point.
Allison and I are both still trying to process this news.. I mean, its no surprise really. We have certainly read about others having this done during our 3 year stretch battling seizures. ( Mrs Foltz, I will be expecting a phone call from you!!) And after all the seizure meds we have tried and failed.. I can honestly say that there have been conversations between Allison and myself that discussed how awesome it would be if there was something in there they could just cut out and he would be seizure free forever..
BUT... saying that, and then it being an actual reality are two different things!!
Lots and lots to process over the next few weeks.
The plan??
We will return to Memphis and have another MRI done. It will be outpatient this time and it will be similar to the one we just had except they will be using different software to help better pinpoint what they are seeing.
The plan after that will be to schedule brain surgery. The surgeon said it would be a two phase ordeal and we would be inpatient for two weeks. Phase one would include putting EEG grids directly on the brain and do brain mapping to help locate the problem area and places to stay away from. Phase II would be to go back in and remove that area that the seizures are originating from.
Like I said... Lots to process.
Dont get me wrong, we are glad to have this as an option. Like I said, Dawson has failed all the drugs he has tried and Im tickled pink that we may have the opportunity to give him a seizure free life. But the surgery is risky.. It comes with no guarantees, and the right frontal lobe controls a lot of very important things... Like personality for one.. I can't imagine right now at this very moment giving somebody permission to cut my 3 year olds skull open and take out part of his brain..
And at the same time, I can't imagine ever watching my 3 year old suffer seizures/developmental delay/ behavioural issues for the rest of his life either.
Lots and lots of prayer that God will guide us in the right direction as we make decisions that can and will forever alter his life.
There are no re-do's here. Once its out, its out
Thank you again for checking in on us and for your many prayers this week. We are glad we got to come home two days early
Jeff
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4 comments:
Can't imagine how happy you must be to be home (well I do know how that feels)
What I can't imagine is trying to swallow and digest all the new news!
I can only believe that it is bitter sweet, especially when you have exhausted all med options!
You certainly have tried everything else, and I know this is a last resort, but I am glad that you may actually have the opportunity to win the battle Dawson vs. Seizure Monster
AND I am so glad you can get some great direction and advise from Danielle...
I will be praying God makes it crystal clear if this is the direction to go...
get some rest!
HUGS TO DAWSON!!!!
Wow friends,lots to process indeed but hope and answers and for that, we are all thankful.
It has been a long journey to this day and although the future is filled with uncertainty I have no doubt that your incredible faith will carry you the rest of the way.
Have watched your amazing guy fight this beast for over 2 years ... time to see Dawson reign victorious!
Love to you all.
Dear Dawson and family-
I'm a complete stranger who has been reading your blog and praying for your family for several years now. My heart goes out to all of you and the difficult journey you've been on. We walk a similar path with my six year old son. I had to leave you a comment today because we went through this same surgery just weeks after my son's third birthday. It is a difficult process indeed, but something we are glad we did. Please don't hesitate to contact us if we can help in any way.
Continued prayers for all of you and congrats on getting out of "jail" early!
Sincerely,
Jody (mom to Ryan the Brave)
lonestar42009 at live.com
Dude...I need your phone number!!!!
...danielle
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