Today is day 24 with no seizures!! Needless to say, we are pretty ecstatic around here. We've been so used to counting seizures on a daily basis that were just not sure what to do with ourselves. You can just tell its making the biggest difference in the world in Dawson. He is talking more and more now, he is communicating leaps and bounds, new words are coming left and right, he is coming and taking us by the hand and saying " GO" and then he will lead us by hand to where he is wanting us to go.
Usually this is to the kitchen where he has spied something he wants to eat. Life without seizures right now is a dream!! I just don't know what else I can say about it.
We are still on go with brain surgery in December. We will stay in this mode until his doctors say otherwise. God has placed us in the hands of some of the most amazing neurologists for a very specific reason, and we will follow their lead regarding his treatment. With that being said, please remember him in prayer as we go back to Memphis Friday for yet another MRI that will better point out this area that his seizures are originating from. The MRI itself is not such a big deal but having him put to sleep is always a little rough on us HA!!
We did talk to his neurologist in Huntsville today and they want us to have another EEG done in November to see what is actually going on in there seizure wise since they have stopped. Were hoping for some really good news... ( like a normal EEG)
Until then we are just enjoying watching Dawson.... well.... just be Dawson.
Promise to put up some pics and videos very very soon!!
Our love to all of you
Jeff
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5 comments:
I'm so happy for ya'll. Praying that this will keep up. Ya'll definitely deserve it :)
AWESOME, AWESOME, AWESOME!!! Woo Hoo!! :)
We are doing the happy dance here in California!!!Prayers continue for your amazing little guy!
I wondered about surgery...if you guys were having cold feet now that he's on a SF trend. Ugh. And silly me...never thought that an EEG would help add clarity. Guess that's why the neuros are paid the big bucks right?!
I can't relate...once Trevy relapsed it was onwards and upwards as far the seizures went. But I do know that even with more seizures in a day than there are seconds...we still had cold feet moments. It's part of the journey...
(((((((((hugs)))))))))))
...d
THANK GOD!!! 24 days is amazing! God sends us miracles everyday...and Dawson is proof! I am so overjoyed for all of you, and the progress!!!
Hopefully I will have some time in the next few nights to give you guys a call!! Prayers are sent your way!
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