Lamictal Anger

Dawson's current meds and doses are as follows:

4mg of Lamictal AM ( 2 2mg tablets crushed)
30 mg Topamax AM ( 2 15 mg sprinkles)
45 mg Topamax PM ( 3 15 mg sprinkles)

So today Allison calls Dawson's Neuro to see if we can get some more Lamictal samples and the Nurses tell us that they are no longer able to get Lamictal in a 4 mg dose. They are only able to get 5 mg doses. Excuse me Mrs. Nurse?????

Now most of you would say so whats the big deal. Just get the 5 mg and go on. But those of you who have kids on seizure medication knows that 1 mg is a HUGE deal. That's just the way these meds work. Give one mg too little and you get no results. Give one or two mg too much and the meds can actually make seizures worse.. So yeah, we have been seizure free for 4o days now and its because we finally hit those magic doses of the right meds. So to change his meds at this point in the game was unacceptable to us...

Allison got on the phone with the people who manufacture the drug and guess what?? You can still get 4 mg doses. I don't understand why our Neurologist ( with whom we love to death and has done wonderful things for Dawson) would just leave it at " we can no longer get it" A couple of simple phone calls made by us and badda bing, badda bam here you go...... So we are just a little disappointed in Dawson's Doctor right now. We have enough 4 mg tablets to get us through the next 9 days and hopefully we can get some more by then.

On a more positive note. Dawson is doing fabulous. He did put up a wonderful fight last night about going to sleep. He fought it to the very end but eventually he gave it up and went on to sleep and did his usual 6 hour slumber. Even though it gets aggravating when he fights sleep, I still like it because Its that same fight in him that has helped him overcome all the obstacles. I pray that he will keep that fighting spirit.

We are so proud of what he is accomplishing. There seem to be changes in him daily now. He is rolling with ease from back to front, and front to back. Easily going from stomach to sitting by himself ,and going from laying on his back to sitting by himself. He gets on his hands and knees, drinks from his sippy cup by himself, and has been caught trying to pull himself up on a table. He says DA DA and MA MA ( Ma Ma when hes mad) and will occasionally give you kisses when you ask for it. Its just a miracle !!

Thanks, as always , for your prayers, your friendship, and your support.

We love you all very much

Jeff and Allison