Friday, December 18, 2009

Another long overdue update

Things around here have been pretty uneventful and that's just the way we like it. We have been busy with the typical holiday stuff. Working, trying to figure out what to get the kids for Christmas. Oh and just recently ( last night) found the time to do some decorating around the house. I have been meaning to sit down here and write out something but just haven't had had anything much to say. Is there such a thing as bloggers block??

Dawson is doing really good. Seizure patterns are kinda weird the past couple of weeks. He was going a couple of days seizure free and then he'd have some in the middle of the night. We are still getting a day or two of seizure freedom here and there and as of a couple of days ago the only seizures he was having was upon waking in the middle of the night. Just in the past couple of days hes had a couple at odd times. Do you have any idea how bad I hate seizures?? Of course you do.. Allison and I are busy racking our brains trying to figure out something as to whats causing him to go days with none and why in the middle of the night hes having some but none after daytime naps???

The only thing we have been able to figure out is that we have No clue about the rhyme and reason of seizure activity!!

Dawson's mood has been all over the place. He had a run of about three days last week where he was just awful. Nothing would make him happy, temper tantrums, fits of throwing things, non stop crying and stuff like that. Just the other day he had a complete meltdown. I mean a true meltdown!!

After about 45 minutes we finally figured out what was bothering him so badly. Wanna know what it was?????

His Pacifier had a hole in it and it just wasn't sucking the way he wanted it to.. That's all it took to send him completely over the deep end.. Honestly we think he was more frustrated that he couldn't tell us what was bothering him so badly. And here we are trying to shove the stupid thing in his mouth to sooth him.... Go figure. We even took him to the Doctor just to make sure there was nothing physically wrong, such as an ear infection, that was putting him in this foul mood. And then all this leads to the same ole questions we've had for a while. Is it two year old tantrum stuff??? Is it seizure related?? Is it med related?? Is it possible abnormality of the right frontal lobe related??? Who knows.. We really really hope that whatever this is passes because it when he acts like hes been acting ,it really raises the stress level in the house..

The past couple of days have been much better for the most part but I understand Grampy had a pretty rough day with him today and tonight has been no picnic either.

So, seizures are still very much improved and we are so thankful for that.

Mood........... yeah well one out of two ain't bad I guess.

OH and check out this new fun thing Dawson is doing. I almost forgot to mention it... He is now started to refuse his seizure meds and B6 that he takes with his Keppra. What a fun little game that has turned out to be. Were running out of ways to trick him into taking it.

Please continue to pray for him. and for us :)

We love u all

Jeff and Allison

1 comment:

Tara Bennett said...

Sending love and prayers for continued improvement for those darn seizures!