The past couple of days have been pretty good. Seizures down in numbers and we have continued to see " the old Dawson" shine through. Today and this evening have been kinda iffy though. He had lots of single seizures today and plenty of fussiness to go with them. The longer it goes the more it appears that he CAN feel the seizures coming on, and whatever is going on in his brain prior to a seizure.... Well it just doesn't seem to like it at all. Can't say I can blame him.
Developmentally were still doing really good. His biggest area of opportunity is of course speech. Speaking of which, we have a Neuro visit this coming Tuesday and while there, I think the plan is to do an EEG and then we will be meeting with the Speech Therapist to do a complete work up and get a game plan together.
Dawson's case was supposed to be discussed with the big wigs at UAB hospital yesterday. Neurologist and Neuro surgeons both were to discuss the findings of his most recent PET scan, MRI, and 8 day VEEG. We have not heard anything back from his Neuro on this yet and she may be waiting until she sees us on Tuesday to discuss the findings. I hate to wait any longer than necessary but it seems plausible that it should be a face to face kind of conversation I guess.
Thats about it for us. Hanging in there and like I said earlier, very relieved to see Dawson running around and playing again.
Thanks as always for your thoughts and prayers for us
Jeff and Allison
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