Monday, September 24, 2012

2 Years Seizure Free

We have been absent for a while.... So in case anybody noticed I thought I would write a few lines in hopes that you will celebrate with us tomorrow.. 2 years seizure free!!! The words just roll right off the tongue.... 2 years seizure free... I just love the sound of that!! Dawson is doing amazingly well. He had a fantastic summer where he learned to swim and was chocked full of fun for him. To say he is doing amazing just really doesn't do him justice.. You would almost have to see for yourself. Seizure freedom has changed our world just as dramatically as the world we were ushered into starting with his first seizure.. ( I love this world MUCH better) Dawson is excelling in school, and very easily carries on sentence style back and forth conversations. After thousands and thousands of seizures, hospital visits, test after test, developmental delays.. we are here... Unbelievable, but were here. We no longer speak much of infantile spasms. It is a world that we lived in and God allowed us an exit door. We took it running and never looked back. Two years later, we remember every intricate detail of every day with seizures, and yet at the same time it seems like some sort of bad dream that you remember you had but have a very hard time remembering any of the details. No longer do I look at Dawson sleeping and worry about him waking up and having seizures, no longer do I worry what is happening in his brain, we don't sweat EEG's anymore because they are always normal.. He is a healthy, happy, smart, worm digging, talking and singing, burping, drink spilling, sister bothering, peanut butter and jelly on my face wearing normal little boy.. and I couldn't be happier.. Happy two years seizure free Dawson!!!! Thank you Jesus!!

1 comment:

Heather said...

Wow. Just wow.

Hard to believe one of my first images on your blog was Allison giving Dawson an ATCH shot ... in the car. Hard to believe the things we did, isn't it?

Well, lots of love and prayers flowing from our family to yours as you celebrate this incredible time. Never forgetting where you all came from but at the same time, rejoicing in today and facing forward with hope and faith for beautiful tomorrows.

We hit 4 years seizure freedom on May. Still on Topamax but trusting that one day we will feel the confidence to make the leap and begin wean. We also are about to hit our 4 year mark since leukemia came knocking and as all these dates and anniversaries approach, I am filled with gratitude for the gift of each and every single day with our fighter girl.

Kisses to your boy form California.