Hello friends, family and neighbors. Spoke with the neuro today and she suggested upping the dose of Keppra from .5 ml to 1.0 ml. This is double the dose and we give it to him morning and night. He will get another ACTH injection in the morning. Seizures still seem to be well in control but there are times as hes going and coming out of sleep that he seems to have a few very small ones. They are almost unnoticeable but trust me we notice. It is highly possible that they are not actual seizures but i find myself trying to dissect every jerky move and every odd look that he has. An arm flings out and i think.. was that one?? As a parent I don't know if you ever get past that.
God is so good and we still see good changes in him with every passing day. We celebrate things that often just go unnoticed to most people as their children develop. laughing, watching TV, sucking fingers and thumbs, noticing Christmas lights, smiling when he sees you, all of these things are celebrated and we look forward to see what he will learn next.
I think Allison mentioned in an earlier blog that we have turned the " comment page" on and we welcome anything that you would like to add. Everybody has been so kind with their thoughts and prayers and we are so fortunate to have a network of friends and family such as you. Allison and I talk about it every day. Our faith, and people like you is what keeps us strong.
Please pray that God will continue to work directly through his doctors, and his meds. I think were all going to witness a miracle!!
We love you all
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