Good afternoon everybody!. Dawson has had a really rough day sleeping today. So far he is sleeping about 20- 30 min at a time and it's making him really grumpy. With Sat and Sun being the only two days he gets an ACTH injection back to back, I'm sure that's a big part of the reason for the lack of sleep. Other than that he is doing really well.
Somebody asked me the other day what we were getting Dawson for Christmas and I told them
1. Gas money for going back and forth to Huntsville and Birmingham
2. Deductibles
3. Co-pays
Isn't that sad. I'm kidding we are gearing up for Christmas and Madison is getting really excited about Santa coming to see her. She really wants a " kickety kick ball" ( for those of you who watch Wow Wow Wubsy) and we are excited for her. This year is the first year she really knows whats going on with the whole Santa thing, and we hope she has a ball. She deserves it with all that's been going on.
We wanted to get Dawson out to church this morning but the ACTH really lowers his immune system ( I'm told its to that of an AIDS patient) so we are being really careful to keep him away from large crowds of people and were also having to be very persistent with hand washing for those who are around him. The smallest thing could make him really sick and that's the last thing we need.
So still no seizures and we continue to be blessed with prayer, God's grace, great friends, and wonderful family support.
Thanks for checking in on Dawson
We love you
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