Still a few clusters of seizures around these past couple of days. We spoke with his neurologist yesterday by phone and she said its not all that uncommon for them to still have a few seizures as they are being weaned off of the ACTH. They have not affected him in any way so far. No regression of things learned or anything like that which is a good sign. Despite the seizures he continues to learn new things and you can see small differences in him almost daily. He is wanting to grasp things now, and he was sitting up this morning ( with little assistance)
He was receiving 1ml of Keppra and his neuro wants us to go to 1.5 ml for one week and then go to 2 ml to make up for the reduction of ACTH
Also the nurses had scheduled our VEEG in Birmingham for January 24 but our Neurologist said by phone that she wants him there much earlier than that. She is trying to work him in as soon as possible. We are hoping to get to go next week but we will find out for sure Monday during our visit
We love you all
The Wades
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