So far so good as of this evening. He has had only one cluster after a nap that had 5 seizures in it. Up and down we go, where we stop nobody knows.
I want to say that we're starting to make progress but I have to remain grounded in the fact that tomorrow he is likely to have just as many as he was having 4 weeks ago. At least we are having days that are better than others when it comes to seizure activity. A few weeks ago we would have killed for a day like today so that seems like good progress right??
We remain cautiously optimistic.
We are still struggling with giving him the dosages of Topamax and B-6. I have been mixing the Topamax with coolwhip and putting it on my finger and giving it to him that way with pretty good success. The coolwhip helps with the B-6 too but its still a pretty good struggle to get it in his mouth. We will be posting some new video of him within the next day or two so be sure to check back so you all can see how much he has grown. We are so proud of him!!!!
We love you
Jeff and Allison
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