We started on Topamax yesterday evening and it seems that his seizures were worse today than they have been in a while. We are at a very low dose and he is only getting it once a day right now. Over the next couple of weeks we will be titrating up in dose and in frequency. He seemed a little fussier than usual after giving him his first dose yesterday, so we are going to give it to him earlier in the evening and stick with his usual 7:00 Keppra dosage.
If you will remember a last week post, we had a lady from Early Intervention come out and spend about an hour with him evaluating his developmental condition. She submitted her official report and we got a call about that today. According to her evaluation, he has Zero developmental delays. I cant begin to tell you how elated we are to find out this great news.
The odds of Dawson having this condition are like 1 in 2000 to 6000 live births ( very rare) and the odds of him having I.S. and no developmental delays are astronomical. I am thinking right now would be a great time for us to play the Lotto!!
We are blessed, and we are lucky, and we are determined to find a way to stop these seizures in our son. God is continuing to answer your prayers and ours. The fact that he is doing so well developmentally is all the proof than anybody needs to see that God is still in the miracle business!!!
Thanks for the wonderful and helpful comments left for us. It is so awesome to know we are not going this alone and we have such wonderful friends and family to walk this journey with us.
We love you all
Jeff and Allison
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2 comments:
I have a Dawson too - he is 7. I hope you continue to find medicine that helps your son. He is beautiful and I will say a prayer for him! Jennifer
Wow, that was powerful, Jeff. It brought tears to my eyes (I am emotional anyway, but that's beside the point)! I am so glad for you guys, this is such a blessing!!! Take care and stay strong!
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