We have to be as flexible as the wind blows these days. On minute were fine, the next were not, then were home, then in Birmingham doing all this stuff...
the lastest wind dirction has brought us back home thank goodness.
The reason why is that first and formost, they want to see this new seizure type on EEG.
He has had two episodes in a two week time span so the odds of catching one just random is pretty slim. We are going back November 9th for 5 days where they will start to ween Dawson off of his meds and force the new seizure monster to rear his ugly head. Yeah thats right, We want to see what you look like so we will better know how to kill you!!
( obviously the hospital stay and the drive home has made me violent)
Also, Based on what they caught the last two days while we were there, It looks as though most of his seizure activity is coming off the right side of the brain. Soooooo With that being said, we will first thing when we get down there is do an MRI ( he hasn't had one since he was 3 months old) and they will also do a PET scan to see if maybe his seizures are coming from a centralized location and could possibly be a candidate for surgery........ Trying very hard not to go there in my mind yet because there is way too much unknown. Well cross that bridge when or when not we get there.
So we are home and the top priority for us tonight is rest. Dawson picked up some bug in the hospital because he is running a fever and coughing and green snot. So hopefully some Motrin and a good nights sleep will help cure that.
Thank you for all your prayers over the past couple of days. Continue to think of Dawson over the next coming weeks. We are kinda dreading the next visit although we know it will provide us with a lot of answered questions, and to a parent whos kid suffers from seizures, answers are as good as gold!!
We love you all
Jeff and Allison
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6 comments:
Glad you're home!! Praying for some good rest and for little bud to feel better!! Love ya!:)
sigh, that seizure monster is a tricky son of a gun. never fails that he doesn't show up when you want him to. must be something in the air...I'm contemplating axing, shooting , and burning our pumpkins. (you'll have to see the comments of my most recent post).
Well, atleast you have a plan of action. Still for some reason can't get our neuro to write for a pet scan. maybe it is b/c we are looking more generalized. Try to get some rest!! Thanks for the update!
Sucks to go to the hospital, it just makes kids sick! He'll be in my thoughts, that's for sure.
Glad you have found home or it you.Although the 5 day stay will be so not fun,with that and a PET,they should be able to come up with a game plan.As for surgery,we'll all go there right along with you if that road becomes an option.You are surrounded with so much love and support and we all will help you find your way.Love and prayers for sweet Dawson, from California.
Just got caught up on all that has been going on...it amazes how different each day looks for these seizure kids...no rhyme or reason!
Will be praying for answers as he endures the testing.
Enjoy your weekend home!
I know you are happy to be back home. Hope you all are enjoying a peaceful weekend. Sounds like a good game plan and a lot will be accomplished in those 5 days.
Take care! Sending your prayers your way!
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