His Neuro was here today and said its really not all that unusual for this to happen. Still lots of talk back and forth between the Neuros about what is what, and what to do next.
We are starting the Modified Atkins diet this weekend while we are here and if we don't see any better seizure control we will move over to the Ketogenic Diet. She is going to keep him off of the Topomax and Lamictal and put him back on a therapeutic dose of Keppra. So 3 drugs down to 1 is a good thing for us ( and him)
We have already noticed that 2 days off the Topomax and we see small differences in him
( good differences)
So were still here, still waiting
Jeff and Allison
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