Last night he has ONE stinkin little cluster. ONE!!! were here for the BIG ONE, take away his meds and he does this?? Oh this seizure monster is a tricky one. It is hiding and playing games because it knows now its time in my sons brain is limited. We see you in there though!!!
By the way, what is the record for being hooked up to a video EEG monitor?? Anybody know??
because as it stands, they want him hooked up until he has his PET Monday and that would make 7 days. Is that a record?? just curious.
On a different note, Today my oldest daughter Ashlyn turns 11. One of the hardest things about being a parent is having to make choices like this. Although I really don't have much of a choice, being here for my son but having to miss my daughters birthday really sucks for me. I have tried multiple ways to try to be in two places at one time and I have yet to find a good way to do it.
Happy Birthday Ashlyn! I love you more than you could ever know. Im sorry I cant see you on your birthday but I know that you understand why, and because of that I am very very proud of you!!
This morning Dawson woke up pretty happy, but as I type this, the good vibe is starting to fade away as I think he realizes we wont be going home today either.
Thank you Megan and Michelle for stopping by yesterday. Dawson's world was completely lit up while you were here and we thank you so much for that!!!
Ill post again after the neuros make their rounds. Were interested in hearing what they have to say this morning. Thank you all for your kind words and support. Lets face it, us being here, and doing these test are not the end of the world. Its inconvenient and uncomfortable yes, but there are much worse things than this going on. With that being said, you taking the time to say a word or two to help us and more importantly your prayers means the world to us.
THANK YOU!!
Love u all!!
Jeff and Allison
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