Thursday, November 12, 2009

Where are the stinkin seizures???

Dawson's seizures still remain at bay. Have you ever heard of such??? Take a seizure ridden kid off his meds and his seizures get BETTER???? good grief.

I know that some seizure meds can make seizures worse if its the wrong med but these are meds hes been on since the beginning. The same meds that brought him seizure freedom for close to a year. So im not really buying into that thought very much. And I know that if left off the meds long enough his seizures will continue to worsen again. Its just weird that were here trying to catch a big seizure on VEEG and the stinkin things get better.

Dawson FINALLY took a long long nap this afternoon. Close to 2 hours. Its the first time hes been able to settle down long enough to do so. This morning started off kind of rough but as the day has gone on he seems to have settled down a little more to this new environment. All in all, the day really hasn't been that bad, just LONG time seems to creep along slower than usual in places like this.

AND...

We were given the gift of being able to unhook from the monitor for 30 min at a time for wagon rides through the hospital. Weve gotten to go out twice today and what a blessing. Dawson LOVES the wagon ride and its a great break for him.

AND.....

My parents are coming down tomorrow and they are bringing sweet little Doodle Bug.
( Madison) Dawson is absolutely going to flip out when he sees her. Those two are quite the pair and I know it will make tomorrow a much better day for him. They are going to stay and spend the night. The extra pair of hands will be helpful as well.

So here we still are. All dressed up and no where to go. Waiting on the monster to show

STUPID SEIZURES

Love to all

Jeff and Allison

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