First things first. Dawson had a very happy birthday. The weather was perfect, he was in a great mood the entire time, and only had one seizure during his party. We stayed outside the entire time which is where he loves to be. We'll be putting some pics up soon but all in all the birthday was a huge success, and Dawson had a lot of fun.
We have are now off the clobazam and the number of hard seizures that are wiping him out have subsided to about one a day. He had a big one last night during dinner and these things are just heartbreaking. He still has the spasm type seizures that we are so used to seeing and as bad as it sounds we much rather like seeing those as opposed to those long seizures. Hopefully as the days progress the hard seizures will disappear completely.
In other news, Dawson started his first day of therapy at school today. He is going for an hour and a half three days a week and today he did just wonderful. He didn't fuss or cry and it sounds like he cooperated for the most part. Its just so hard to believe he is actually big enough to go to school.
We will be traveling this weekend so say some prayers for us. We are flying out of Huntsville Friday morning at 7:00 am ( cough cough) and will be in Baltimore for a wedding. I have to say i'm a little nervous about Dawson. First of all we are going to have to wake him up around 4:30am ( which is NOT going to go well) and then who knows how the rest of the day will go. This will be his and Madison's first time flying but when your stuck in an airplane with a seizure boy with behavioral issues......
Just pray for us ok??
We will be flying back home Sunday and Im sure we'll have some great stories to tell about our trip.
Thank you for all your prayers through these difficult days. God is the light that we follow through the stormy weather!!
Our love to all
Jeff and Allison
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5 comments:
Praying for you and sending late,so sorry,birthday wishes for your hero boy.
Hard to believe we have been watching your little guy grow now for well over two years.Where ever does the time go?
We pray for safe travels and we definitely pray for Dawson to find his way to seizure freedom once again.
Much love from California.
I can't believe he's already 3!!! Time certainly flies. So sorry you continue to deal with those nasty seizures. Yuck. I hate seizures. Praying your little guy will soon get some relief and enjoy this new endeavor with school...I think he will thrive!!!
Make sure you pack your boxing gloves...to knock out any eyebrow raisers! ;)
Just kidding. We're supposed to turn the other cheek right. Bleh.
Praying for a smooth trip and understanding people along the way!
(((((hugs)))))))
...danielle
HAPPY BIRTHDAY!! Glad he had a wonderful day!
I will pray for a safe and easy trip! Once your home and settled give us a call...it's been too long since we last spoke, and I have been down lately. I have been doing too much researching, and that isn't good when you don't have a cause...it causes lots of heartache that may not be necessary!
Hope you are all doing well!!!
Glad the party went well...hope the trip did, too. :)
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