The first test he had done today was a " resting" Metabolic test. I emphasized the word resting because the readings are supposed to come while the child is at rest. But to do the test they put this hard dome like shell over him that had a cape around it, so it looked like he was trapped in some sort of space suit and ready to fly to the moon. The device measures his breathing while at rest. So did Dawson rest while in the space suit??? Of course not!! who could rest with that thing over you?? He put up a great fight and I was pretty proud of him for fighting it off so well. I couldn't blame him at all. If somebody tried to put that thing over my head they would have to fight me as well LOL.. Anyway after a long hard fight he finally went to sleep and the were able to complete the test along with an EKG.
The next place we had to go was to the neuro genetics building. There we had a consult with Dr. Schoffner. He is the one who will be doing all these studies from the many donations Dawson will be making in the morning. I say many because he will be donating blood, urine, spinal fluid, muscle, skin, and some tissue. I think ear wax is the only thing left for him to donate.
Dr Schoffner seems like a great person and we left with high hopes that in all the many weeks of studying Dawson's samples that he will find an answer to what is causing these seizures. He said that with today's technology they are able to find the cause in about 60 to 70% of the cases. He also says it is definitely a genetic issue. We pray that God will work through him to find answers that we desperately seek.
Madison did great today. She was such a trooper and so helpful with " Baby Buddy". She has been very patient and since none of these appointments are in the same location so its a lot of driving around looking for where we are supposed to be. So far so good though. I have come to realize that Atlanta is not a place that I would enjoy living. Traffic is horrible!!!
Anyway, Tomorrow is a big day for us so keep Dawson in your prayers. We will post after surgery to let everybody know how he is doing. Thanks for the prayers
Jeff and Allison
1 comment:
With each new day and it's passing, is another day closer to finding some answers for Dawson and working towards seizure free being his new way of life. He is a brave little guy, whose strength will continue to carry him through whatever is in store for him tomorrow and everyday there after.
Our prayers continue, Zoey and family
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