Last night was pretty rough. Dawson did one of his " I am just not going to sleep tonight" deals. He just could not seem to settle himself long enough to fall into any type of deep sleep. So we were up most of the night trying to get him to sleep. He would fall asleep, we would fall asleep, he would stir and wake up, we would stir and wake up and the process would start all over again until finally the sun came up.
He had a couple of days like this last week and then seemed to get over it. Hopefully he will get over it quickly this time too. Seizures still remain at bay and we are very very thankful for that. I know that we have quite a while to wait but I am already finding myself anxious about the results from his muscle biopsy. We are praying that it will shed some light on his situation.
Katelin continues to do very well. We were in Huntsville today for a Dr. Visit. Her blood sugar levels are doing pretty well but we are having to give her 4-5 insulin injections daily to keep it that way. She seems no worse for the wear. I wish I could say the same thing about myself.
Keep up the prayers please and we love you guys.
Jeff and Allison
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3 comments:
Praying hard for rest for the weary. Seems to me that 5 steps forward in some areas means 3 steps back in others. So thrilled that at least the 5 forward remain in the seizure department. Prayers continue for the brave little ones, especially Katelin today.
We definitely know about sleepless nights!! Maybe it's teething related? I'm sure he'll be back to himself in no time! We're still so happy to hear that he remains seizure free. I am curious what meds he is on (and at what dosages)? If I remember correctly he was on lamictal and you were lowering his dose of topomax when the seizures stopped? My prayers for a good night's sleep tonight!
Hang in there,
Tera
Dawson is on 4mg of Lamictal and 30mg of Topamax in the morning and 45mg of Topamax in the evening. He didn't become SF until the Lamictal was added...we went up and then back down on it too.
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