The video posted at the top was something Allison found. It was found on a blog of a couple whom we have just met. We were both deeply moved by the video. It took us right back to the first days of having found out Dawson had Infantile Spasms. He does not have Tubular Sclerosis as described in the video and we thank God for that. We wanted to post it to help draw some attention to families just like ours who have lived with this devastating condition. We hope you will take the time to watch it. Coincidentally, there are a few pics of Dawson's Neurologist in this video. We love you all
Jeff and Allison
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2 comments:
I agree this video is so powerful. It has really helped our friends & family understand what we are going through, and what emotions are involved. It really does hit home for us too.
Never,in a million years, would we, as parents of children who have suffered from IS or any other seizure disorders ,be able to convey to outsiders what it is like to watch your child endure this horrible assault to their bodies and minds.This video is as close as we can get.Hard to watch but the reality of what our precious children have had to courageously fight.The fight continues for many and we pray daily for them all.
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