Off the deep end Part 2

First and foremost, thanks for all the great comments and support regarding the instability of a two year old with seizures and those wicked meds they have to take. My heart really goes out to ALL these kids. The meds are so necessary and aren't we all thankful for them?? But sometimes I think that in some cases, the meds are worse than the seizures themselves. I KNOW that is not true, it just seems that way sometimes.

Heather THANK YOU and I plan on taking you up on your offer.

Really, thank you to all our friends out there. You continue to be there every time we need you

Dawson's mood this entire week has been so much better. Still problems, but SO much better.
Which means you all have been really praying for him. Thank you

We have an appointment with his Neuro this Monday about all this and in the meantime we have dropped his dosage of Keppra a little and it seems to be helping. I think we have his behavior problems broken down into two categories:

There is the Dawson who just wants to be snuggled up as close to mommy as possible. Does NOT want to be put down, does NOT want to be left. He constantly rubs her skin, will walk away on his own for very brief periods of time but for the most part will loose his mind if she is not holding him. I'm convinced this part of his behavior is seizure related. We might not be seeing physical seizures at the moment but you can just tell he is VERY irritated at whats going on in his brain.

Category two is the Dawson who is otherwise having a pretty good day. Playing with his sister, or playing on his own, when something goes awry. Usually very minor, but none the less he really flips out and just loses complete control of his temper. It escalates very quickly and really turns ugly!! I believe that this type of problem were having is more med/two year old related. Im not sure how to fix either one of these but maybe it makes me feel better to have them broken down like that.

Thank you God for this week. His mood/behavior has been markedly better and we even went a two day span without seeing any seizures this week. Continue to pray specifically that we will get a better handle on some of these behavior issues.

As a side note, Katelin had her insulin pump installed at Vanderbilt about a week and a half ago. Other than having to change the thing out on the side of the interstate on the way home it seems to be going really well. Were excited for her as she has been looking forward to getting it for so long. The technology gives her so much better control and freedom. She has to change her pod every three days, but that equates to getting stuck once every three days vs. a min of 12 shots over a three day span. Go Katelin!! were all so happy for you

Looking forward to a great weekend although its freezing cold in north Alabama. Literally!! I think the high today is 28 and the lows this weekend are single digit. BRRRR Everybody please go out there and crank up those SUV's we could use a little more global warming here. Hey get over it, its my blog and I can say what i want to!! ha!!

We love you all and thank you for your prayers and friendship

Jeff and Allison