Saturday Feb 2nd update

Happy Saturday everybody.

I am happy to report this morning that seizure activity is on the decline. His last seizure was yesterday afternoon and it was only 3 small spasms. Nothing yesterday morning, nothing yesterday evening, and nothing so far this morning. We live for moments like this around here now a days. His dosage of Vigabatrin increased last night and that might have something to do with it. He now gets half a tablet (crushed and mixed with cereal) in the morning, and one whole tablet in the evening. Next week he will get one whole tablet both morning and evening.

We have no way of knowing if and when his next seizure will come but we celebrate ALL victories.

We heard from his neurologist and we are to be in Birmingham this coming Tuesday to shoot the training video that we have been talking about. This is a huge opportunity for us and we are very excited about doing it. The video will be used for two things..

1. We will be talking about our experiences with I.S. and how it has effected out lives. This video will be sent to congress to help raise awareness for the disease. More research needs to be done and we pray that this will aid in doing that.

2. The filming and interviews will also enable them to put a training video on the internet so that parents who find themselves where we were 2 months ago will have a tool to help them understand and cope with the news they have just received. It will be used for educational purposes and will be available to download.

I can't tell you how great a feeling it is for us to be able to help other families whose children suffer from this. I love the fact that through tragedy we are able to see doors open, and have the opportunity to do things that we would never have been able to do had this not happened.

Say a prayer for us Tuesday that God will use us as tools to affect the lives of others.

BTW the spell checking device that I use is not functional at the moment so if you see spelling mistakes please overlook them. I am the worlds worst speller and I feel very exposed not having something there to correct my mistakes. HA

We love you and thanks for your thoughts and prayers.

Jeff and Allison