Hello everyone. Typical seizure day again for Dawson. No large numbers of seizures but he has had a few after most naps. He has been a little fussier than usual. I credit that to changing the dose of his Keppra. It seems that when we change doses, or start something new, it effects his mood.
He has not slept well today ( which is probably another reason he is fussy) but hopefully he will settle down here and get some sleep tonight.
Still no word yet on when we go to UAB for the next round of testing...... UGGGG I hate waiting.
It's possible that this testing will give us some answers as to why he is having seizures which means its possible that that information will tell us what meds he needs to stop them. But I am finding it IMPOSSIBLE to have to wait on other people to arrange and coordinate everything that needs to be done.
Anyway he is still doing great. He has really been practicing his " BA BA BA" sounds along with pursing his little lips together and spitting... Yes spitting. Its a little messy but a lot of fun to watch.
Thanks again for taking the time to read up on whats going on with him and for taking part in our journey. We love you
Jeff and Allison
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