Hey everybody, sorry for such a late update today but it has been a CRAZY day. Work, kids, errands, dog in heat, chores to do, ect, ect.
He had a good day today. The only seizures we have seen so far was this evening. We were at the place I hate more than any place in this world ( Wal*Mart) and he woke from a nap and had somewhere around 20 I think. It is hard to count seizures and steer a buggy at the same time,so I had to give an estimated guess.
Last night and again this morning while at Moms house he had a sudden outburst of screaming and crying. It wasn't a fussy cry but more of "Hey I am in immense pain here" cry. We don't know if he is having some tummy troubles or maybe he is starting to cut some teeth. At any rate it took a while to calm him but once he got calm he was fine again.
He slept better last night ( or at least we did) and it felt good to have a decent stretch of sleep for once. I plan on talking to his neurologist sometime tomorrow about the Vigabatrin, him still having seizures, and what we will do next.
Thanks for checking in, and for your prayers!!!!!!
We love you
Jeff and Allison
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