Monday March 24th Update

Dawson has had a pretty good day today. His seizures are still down in numbers. He had two or three clusters but only 2-5 per cluster. Much better than it has been. He still continues to look tired a lot and there seems something different about him to me. I mean he still continues to do well and is progressing..
I don't know how to explain it. Its just something different. I am pretty sure it has to do with his meds and how they affect the brain. On one hand, we are glad to see the seizures are better( although they are still here) but on the other hand, we hate to see him look like hes drugged up which in the only way I can describe it.

His sleep has not been good today and was pretty fussy for Grand mom and Grandad today which I know can make for a long day.

We spoke with his neuro's nurse ( because you can never talk to a neurologist directly without an appointment) and they have decided to leave him on the dose we are on of the Topamax. I am just not sure if I like this stuff or not. Between the Topamax and the B-6 he has learned to fight off anything that is coming at him with a spoon. His introduction to solid foods has been little white BB's, and B-6 ( which is the most bitter thing you can imagine putting in your mouth.)

Poor little guy, he will probably never trust us with a spoon EVER

We are asking that everybody pray that he will better tolerate the Medications he is currently on and that his seizures will continue to decrease at the same time. Prayer is so powerful and we have all seen what happens when we come together and pray. We have already seen some awesome things because of the prayers of many and we ask that we never become complacent, but to continue to pray diligently for Dawson. Our friends ( old and new) and family have just been awesome and we thank you for everything you have done.

We love you

Jeff and Allison