OK so here's a funny story. I hope I can tell it where it will make sense. In order to do that I need to back up and tell you how we used to give Dawson his Vigabatrin. Vigabatrin is a pill that we used to cut in half and put in a pill crusher. After crushing the pill we would mix some infant cereal to mix it with. We would then take one of those very handy syringes that are used to give kids liquid medicines, pour some cereal in the syringe, pour the crushed up pill in the syringe, put a little more cereal on top of that, put the plunger in and squirt the stuff down him. Get the Picture???
The Topamax that we are giving him now is a capsule with little tiny sprinkles of medicine inside the capsule. We are to break the capsule open, take the sprinkles, mix it with cereal, and then give it to him. So why wouldn't it work in the same syringe that we used to give him his Vigabatrin in??? Ill tell you why.....
Those tiny little sprinkles are too big to fit through the tiny little hole at the end of the syringe. That's why. So for two days we have been thinking we are giving him Topamax when actually all we are doing is giving him cereal through a syringe. Yep, after giving him his dose tonight, I went to wash the syringe out and noticed all these teeny tiny little white sprinkles all gathered up at the tip of the syringe....
Sombody please nominate me for stupid father of the year OK??? HA HA
So tonight was his first actual dose of Topamax. ( Mixed with cereal, ON A SPOON DUH!!)
Dawson got some good sleep this morning. He always takes two 20 - 30 min naps in the morning, but this morning at Grampy's he slept for 2 hours and 40 min. WOW. Grampy called Allison at work, Allison called me at work and we all thought for min that something must be wrong with him. Turns out he was just really tired and wanted some sleep. Good for him for sleeping so long though.
Seizures have been about the same again today. 3 clusters with anywhere from 12-21 per cluster. We hope all this stops soon.
Thanks for your friendship and prayers. We love you
Jeff and Allison
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2 comments:
WOOOOW!!!
HE is still in the miracle business indeed! What an awesome answer to prayer. Just saw yesterday's entry. How does it feel to hold a miracle in your arms? He is truly a Jeremiah 29:11 child.
Love,
Uncle Jim
LOL that is funny! Cameran eats those pills like its candy. Chews them right up. She use to not so we put it in some yogurt. They say not to mix it with their fav foods or they will start refusing it, so just something to think about since topamax already gives them feeding issues. Oh and great news about no delays thats wonderful and again very very very rare!!! Just keep a close eye on it though because regression can sneak up on you but I have HIGH hopes for him ;)
Best Wishes Always,
Karen
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